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Anyone out there have a T cell large granular lymphoma leukemia

Posted by beekindtobees @beekindtobees, Mar 12 5:44pm

I was diagnosed with this disease and wondering what I have to look forward to and what treatment plan is being used. So far I’ve been told to give blood tested every three months and wait and see.

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dalefreeman | @dalefreeman | 5 days ago

Lori: I never did tell my mother. Of course, if things had started to go sideways I would have had to tell her, but she passed away in 2020, 13 years after my diagnosis.

I'm very happy with my decision. I know she would've worried in spite of the benign course of my LGL. This way I saved her 13 years of angst!

Some friends, and a few other family members know, so if my course starts to change, I will have moral support.

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