Myofascial pelvic pain syndrome in females. Unrelenting pain in pelvic

Hello, i’m so sorry to hear about this! Have you tried pelvic floor therapy? I have pelvic pain and muscle tightness as well but it doesn’t sound as bad but pelvic floor therapy does work wonders as well as a pelvic wand

Hi, can you tell me about a pelvic wand and how it works? Thanks so much for writing. It is not easy finding someone who also has Myofascial Pain and high, tight muscles. I haven’t been able to start Pelvic Physical therapy yet because pain is strong bad. But I will whenever things settle down, if ever. Mine was made so much worse by fracturing many pelvic bones in a bad fall , eleven stairs onto hardwood floor!

@mshepard1 i can’t imagine having broken my pelvis bc pelvic pain is just so bad im general. mine is caused by just tight muscles, interstitial cystitis, IBS, endometriosis, neuropathy som more. but i get not being able to do therapy bc the pain bc thats where i was until o started low dose naltrexone and that’s when i was finally able to leave the bed. when i do pelvic floor therapy she is either doing a bunch of outside exercises with me that day or doing an internal massage basically the whole time which is what it sounds like. its her fingers massaging all the muscles inside of me trying to loosen and stretch them up is the goal. the way u can do this ur self is with a pelvic wand and there are four maybe three different types of them (intimaterose website) that can feel different but the basic orange one will do just fine. whenever i used this for the first time my therapist used it on me for me but it made me so extremely sore and in pain for days after i have yet to try it again. i haven’t tried it again and im not to worried about it bc my pelvic muscles have def gotten losses since i started and feel better and im scared to try it again so idk how it would affect someone else

@mackvogt13 thank you so much for replying. I also have IBS and some neuropathy issues as well. I understand completely about physical therapy as I did it for four years before I fell! I will get some info on Naltrexone. Thanks also for explaining about the wands although it sounds like I am not ready pain wise to even try it yet. It’s so good to talk to someone who understands about the pain from high tight muscles as most people have no idea what this condition can feel like and how to deal with it. Be well.

@mshepard1 a pelvic PT is your first step. Get an Rx from primary doctor - easiest. Also try a rheumatologist visit. They can order low dose naltrexone.
17 years of adhesions and 3 surgeries have taught me.
Also try ice, alternate heat. But do go see the specialists. I found it takes 2 years for injuries to stabilize. 🌸

@resilience thank you again. I am going to follow your recommendations and reach out to specialists. And to physical therapists who address internal and external pelvic floor issues.

@mshepard1 I have seen and purchased a pelvic support brace. Try Mackenzie -
You want to get to work on the scar tissue and get mobility via pelvic PT. Call around to find one. They are worth the drive.
Tylenol for pain
Ibuprofen inflammation. Hard on organs.
Wish you the best in your healing. Take it slow 🌸

unfortunately many women with severe pelvic trauma and Myofascial Pelvic Pain Syndrome describe symptoms very similar to yours, including constant deep pelvic pain, extremely tight pelvic floor muscles, muscle spasms, trembling or shaking from pain and nervous system overload, difficulty sitting or walking comfortably, and the feeling that the body is constantly “guarding” itself after injury, especially after fractures involving the pelvis or sacrum, because trauma to the pelvic floor can cause muscles, fascia and nerves to become chronically irritated and overactive long after the bones themselves heal, so while your experience is absolutely severe and exhausting, it is not unheard of in people who have had major pelvic injuries, and many patients eventually require a combination of pelvic floor physical therapy, nerve pain treatment, muscle relaxers, trauma-informed rehabilitation and sometimes pain management specialists to get symptoms under better control.

@gizmojay thank you for this response. While it does not really make me optimistic I know that I have to do most of what you listed. You were right on as to how I feel. It is hard to get going because of pain and shaking, but I have to start somewhere. And so many doctors are not familiar with this pain syndrome.

@resilience thank you for your advice. I will get a pelvic floor brace. Not one dr or pt person has mentioned that. I am allergic to Tylenol. Actually all NAIDS which makes this more difficult. And muscle relaxants give me dry mouth!