1. < Neuropathy
Moderator

Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

deenie07 | @deenie07 | Jan 20, 2019
In reply to @lioness "@friendz4 Put your feet on ice for awhile then rest ten heat ,stretching feet wiggle ankles..." + (show)
@lioness

@friendz4 Put your feet on ice for awhile then rest ten heat ,stretching feet wiggle ankles leg exercises, Tapping .com is a good one I use maybe soak your feet in Epsom salts ? Since I don't have neuropathy in my feet these are some of the tools I use for my problems but won't hurt to try

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I have been icing.......also soaking in tepid water with a couple drops of ginger essential oils. That gives me a couple hours of relief. Will check out Tapping.com

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deenie07 | @deenie07 | Jan 20, 2019
In reply to @brucea "Do not go to any run of the mill neurologist. They can have you running in..." + (show)
@brucea

Do not go to any run of the mill neurologist. They can have you running in circles. Make sure he/she is a specialist in your particular area. I wasted one year on a neurologist and now am seeking one who can actually help me feel better - and who cares. Good luck.

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Thanks.

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deenie07 | @deenie07 | Jan 20, 2019
In reply to @johnbishop "Hello @deenie07, welcome to Mayo Clinic Connect. I have no medical training or background but the..." + (show)
@johnbishop

Hello @deenie07, welcome to Mayo Clinic Connect. I have no medical training or background but the pain may be caused by nerve damage or compression of a nerve near the ankle. I think it would be good to discuss it with your foot doctor at your upcoming appointment. Have you had an injury to the ankle?

The Arthritis Foundation has some information on treating ankle pain that might be helpful.
-- https://www.arthritis.org/about-arthritis/where-it-hurts/ankle-pain/treatment/

You mentioned it felt better after a couple of weeks of taking anti-inflammatory medication but then got worse. Is your ankle still swollen or was it swollen?

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Thanks for the arthritis info.

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deenie07 | @deenie07 | Jan 20, 2019
In reply to @friendz4 "I have tried everything, I use Ebanel numb 520 it’s lidocaine 5% in a cream you..." + (show)
@friendz4

I have tried everything, I use Ebanel numb 520 it’s lidocaine 5% in a cream you can buy it on amazon or Ebanel direct site,it can be used 6 times a day I found it to be the best

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I ordered this. Reasonable cost. Thanks for the advice.

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pfbacon | @pfbacon | Jan 20, 2019
In reply to @lioness "@pfbacon See what your Neurologist says I wouldn't take steriords for this since you,ve had bad..." + (show)
@lioness

@pfbacon See what your Neurologist says I wouldn't take steriords for this since you,ve had bad side effects before.

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Good advice -- thanks. Peggy

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garydaniel | @garydaniel | Jan 21, 2019

Hi, Cullen and John,, my name is Gary and I have had diabetes since mid 90s ,, father was diabetic and passed and a brother also and have never heard of femoral. Neuropathy ,,, until it happened. Was looking for info I'm. 62 have exhausted funds, no medical, no job no one will hire cuz I fall,,, on a cane,,,, does this ever get better stop being so weak., stop having so much pain , have meds Dr. Prescription , ,, thanks for any info,, can give more back story if needed,,,, Gary

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Mentor
John, Volunteer Mentor | @johnbishop | Jan 21, 2019

Hi @garydaniel -- welcome to Mayo Clinic Connect. I've had idiopathic small fiber peripheral neuropathy with just numbness in the feet and ankles. I had not heard of femoral neuropathy but can imagine it can be painful. I did find some good information on it here that may be helpful.

What to know about femoral neuropathy
-- https://www.medicalnewstoday.com/articles/324084.php

NIH - The natural history of diabetic femoral neuropathy.
-- https://www.ncbi.nlm.nih.gov/pubmed/1852856

Are you able to keep your diabetes under control? I think that could also make things worse.

You mentioned you are unable to work. Have you considered applying for disability?

3 Tips for Receiving Disability Benefits for Neuropathy
-- https://www.disability-benefits-help.org/disabling-conditions/neuropathy-and-social-security-disability/tips

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sherlock | @sherlock | Jan 22, 2019

I have CIDP too and have IVIG infusions 2 days a month. You might want to discuss this treatment option as well.

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2 replies
friendz4 | @friendz4 | Jan 22, 2019
In reply to @sherlock "I have CIDP too and have IVIG infusions 2 days a month. You might want to..." + (show)
@sherlock

I have CIDP too and have IVIG infusions 2 days a month. You might want to discuss this treatment option as well.

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Thank you how do you feel on it I am so sensitive to everything, I don’t know which one to do plasmapherisis or IVIG

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geegie | @geegie | Jan 22, 2019
In reply to @sherlock "I have CIDP too and have IVIG infusions 2 days a month. You might want to..." + (show)
@sherlock

I have CIDP too and have IVIG infusions 2 days a month. You might want to discuss this treatment option as well.

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@sherlock have you found any improvement with the IVIG?

Also, what after effects have you experienced?

Thanks,
Rose

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