Myeloma returning After 9 years

Posted by justnate @justnate, May 7 2:28pm

Multiple myeloma returning after 9 years of remission IGG Lambda numbers are high 1827 M spike 1.9 Kappa lambda ratio in normal range creatine .90 LDH Went from 155 to 327. That's very scary MRI Schedule for May 8th my oncologist say she's watching the numbers real closely haven't set an appointment to talk with her. Been on velcade and Dex for those 9 years what treatment may come next. Your comment will be appreciated

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

tsch | @tsch | May 7 2:48pm

This is tough news I agree, but if you have done well to now, maybe you will continue to do well with appropriate treatments. There are new ones being developed constantly now. Good luck. (I had a sister with MM in 1988-91 and now a niece with it, so I know its challenging.)

amberl99 | @amberl99 | May 8 8:59am

What I know about it, being just SMM but reading vastly and following the ASH updates, is it is common to need to change up the treatment meds. It’s almost like the myeloma cells catch on and new treatment is added to calm them down. It’s amazing the new meds they are using now. Hopefully you have a MM specialist at a major cancer center. Let us know how things go, I am interested.

justnate | @justnate | May 8 9:24am

In reply to @tsch "This is tough news I agree, but if you have done well to now, maybe you..." + (show)

@tsch Will do thanks for everything

Ginger, Volunteer Mentor | @gingerw | May 8 10:25am

@justnate Knowing your oncologist is watching everything closely, will hopefully give you a sense of not being alone! Remission is just that. There's always the chance things will slide back in to an active state.But, dang, it is frustrating and disheartening, right?

What was your treatment plan before? What is your doctor considering this time? Deep breath, and know you got this! And, thank you for reaching out to us. You're never alone here.
Ginger

justnate | @justnate | May 8 4:44pm

In reply to @gingerw "@justnate Knowing your oncologist is watching everything closely, will hopefully give you a sense of not..." + (show)

@gingerw Got back my LDH test results today It went back down from 325 to 205 normal range Little relieved but not out of the woods yet had an MRI today probably get the results on Monday We'll keep you up to date thanks a lot

justnate | @justnate | May 8 4:51pm

In reply to @gingerw "@justnate Knowing your oncologist is watching everything closely, will hopefully give you a sense of not..." + (show)

@gingerw on velcade and Dex for 9 years my oncologist is here in Chicago at Northwestern hospital Having a blood draw on Wednesday probably will speak with her right after that

Please sign in or register to post a reply.