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Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
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Hello Barbie @6969, welcome to Mayo Clinic Connect. Thank you for being an advocate for your daughter. It's good to learn as much as you can about a diagnosis or health condition. Connect is a great place to ask questions and learn what others with similar health conditions or symptoms are doing for treatments. Here is some information on polyneuropathy:
Medical News Today (April 2017) - What to know about polyneuropathy
-- https://www.medicalnewstoday.com/articles/317212.php
Mayo Clinic - Symptoms - Numbness in Hands
-- https://www.mayoclinic.org/symptoms/numbness-in-hands/basics/when-to-see-doctor/sym-20050842
Did your daughter's doctors provide a referral to Mayo Clinic? If you would like to seek help from Mayo Clinic, you can contact one of their appointment offices. The contact information for Minnesota, Arizona and Florida can be found here:
Mayo Clinic Contact Information: https://www.mayoclinic.org/appointments
Has your daughter found anything that helps with the numbness in her hands?
John
no she hasn't.....and thank you.....her skin is itchy....she scratches till she bleeds because she can't feel anything. Do you know any causes someone just unexpectedly gets polyneuropathy? It started with her lips going numb.
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1 Reaction@6969 Barbie, if your daughter suspects that alcohol might be a cause of polyneuropathy, she might be interested in this article https://www.alcohol.org/comorbid/polyneuropathy/
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1 Reactionthank you
What are the differences between the different 'types' of neuropathy? Peggy
Hi Peggy, probably the best easy to understand explanations I've heard are from Matthew B. Jensen, MD - a stroke neurologist at the University of Wisconsin in Madison. He has a YouTube channel with quite a few introductory type videos. Here's the link.
https://www.youtube.com/channel/UCJaXGRxxjnF2mvLiOFmmHLQ?reload=9
John
Hello Members, I had just asked the question about CBD oil. I actually got CBD in a pill form and small bottle form. It must be from hemp as I don't think the THC is legal in Missouri. My neuropathy is mostly in my toes shins and calfs of my legs. I have been told it will get worse with time. So far after one week the CBD doesn't seem to have much effect .The small bottles with the eye dropper, I was told to put it under my tongue. Should I be used on the skin of the pain area ? Thanks, Jerry
Hi Colleen, I had posted a question about the use of CBD as I received small bottles with an eye droppers and a bottle of pills. Should it be applied to the skin?
Hello @stlouismo -- welcome to Mayo Clinic Connect. There is another discussion on Connect that you may want to read and post any questions in for more visibility:
Groups > Neuropathy > CBD oil for Neuropathy
-- https://connect.mayoclinic.org/discussion/cbd-oil-for-neuropathy/
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1 ReactionYour CBD isn't strong enough. Try 250 CBD then go up from there. I like ointment because I can rub more on throughout the day as needed. I found that pills and under the tongue tincture didn't work for me.
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