Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

beckiw814 | @beckiw814 | Sep 18, 2018

In reply to @johnbishop "Hello @beckiw814, Welcome to Connect. I see you have already received some great information from @jenniferhunter...." + (show)

@johnbishop My doctor just ordered X-rays of my cervical spine. It is the PAs belief that the neuropathy that I’m experiencing is starting there based on my symptoms. X-rays have been done. Hoping to hear from my doc by Friday regarding results.

John, Volunteer Mentor | @johnbishop | Sep 18, 2018

In reply to @beckiw814 "@johnbishop My doctor just ordered X-rays of my cervical spine. It is the PAs belief that..." + (show)

Hi @beckiw814, can you let us know when you get the results? I'm hoping they have some answers for you.

beckiw814 | @beckiw814 | Sep 18, 2018

In reply to @johnbishop "Hi @beckiw814, can you let us know when you get the results? I'm hoping they have..." + (show)

Me too! They think it may be a bulging or slipped disc. They said it could also be a pinched nerve from my RA.

cyme | @cyme | Sep 18, 2018

In reply to @beckiw814 "My name is Becki. I am experiencing severe nerve pain in my left hand. I was..." + (show)

Hi beckie I posted about my hand surgery in my left hand and I'm new to group about 2 or 3 weeks ago. So I really dont know how to go to these post but have pain in my dominant hand which is my left . They did a ANA test which came out normal but my diagnoses is complex regional pain syndrom/RSD. I has nerve block done but I have not seen a neurologist. No one said I needed too. What should I do. I go back to the doctor September 28

beckiw814 | @beckiw814 | Sep 18, 2018

In reply to @cyme "Hi beckie I posted about my hand surgery in my left hand and I'm new to..." + (show)

@cyme My rheumatologist had me see the neurologist because I had neuropathy in both hands and feet. I also had a head injury as a child. I cannot get into see my neurologist until December so I went to my family doctor because of the severity of the paiin. I would ask your primary doc if he/she believes that maybe a neurologist could find the root cause of your issues. Good luck.

goetf4997 | @goetf4997 | Sep 18, 2018

I am new and have issues with numbness and numbness pain from spinal stenosis issues.
Can anyone help with the reduction of numbness, numbness pain?
Presently can only use Tylenol with Gabapententin. Does not do anything for me.
Help if you can.
Thanks

vander626 | @vander626 | Sep 18, 2018

With regard to the Gabapentin...........there is a specific protocol when using it for chronic pain. It takes several weeks to build up to the optimal dosage. Were you given that protocol? If so, did you follow it?

vander626 | @vander626 | Sep 18, 2018

In reply to @goetf4997 "I am new and have issues with numbness and numbness pain from spinal stenosis issues. Can..." + (show)

BTW, there is considerable research which suggests that PT offers the treatment which is most effective in the long run. I was skeptical but decided to try it a couple of years ago; now I am a BELIEVER!! Now, PT is my first choice for almost ANY kind of chronic pain!! Physical Therapists now hold Ph.D.s and are MUCH better prepared than chiropractors!

goetf4997 | @goetf4997 | Sep 18, 2018

In reply to @vander626 "With regard to the Gabapentin...........there is a specific protocol when using it for chronic pain. It..." + (show)

Of course. Now up to 300 three times a day

vander626 | @vander626 | Sep 18, 2018

In reply to @goetf4997 "Of course. Now up to 300 three times a day" + (show)

So you are nowhere near the optimal dosage for chronic pain; it takes time in ADDITION to the medication. I know that it is difficult to be patient, You may want to ALSO consult with PT; it can't hurt!