Has anyone found a treatment that helps with peripheral neuropathy?

Posted by bigjohnscho @bigjohnscho, Jul 1, 2025

I suspect that everyone on this forum has been searching for a medication that helps their neuropathy and even though you no that all the internet claims are false we continue to waste hundreds of pounds. Desperation is a powerful force. Has any one been fortunate enough to find a genuine treatment. I just can’t believe that there are so many awful people who prey on our vulnerability and knowingly orchestrate such elaborate scams.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for hookedongolf2004 @hookedongolf2004

Do you think you have a block in your spine? Have you ever had a lumbar MRI to determine that I have an excellent doctor that I guess people come from a long way away to have him because it’s such a very simple surgery. I went so easily a spine blockage or a compression can cause the same symptoms as your neuropathy. Let me know if you’re interested in knowing the name and by the way, where do you live?

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@hookedongolf2004
Yes, I would love to have the location and the name of your doctor! Thanks!

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Profile picture for suzirtist @suzirtist

@hookedongolf2004
Your story almost mirrors mine! But you have sunk a lot more money into it that ai have, only to get the same answers.
Its SAD and CRIMINAL for all of the fake neuropathy creams and pills out there!!
I had a spinal stimulator put in early on in my neurology treatment. Its helps, but only a little.
I'll skip past all of my meds that I've been on..
So now Im taking Amatriptyline (sp) at nite. It HAS eased the nerve pain a lot and helps me sleep.. then in the day Im taking Pregabulin.
I believe mine comes from spinal stenosis too...but my Ortho docs do NOT want to do anything about surgery in that area...
I believe they just don't know enough about that kind of surgery...so my option is to just wait til the nerves die I guess!!
How sad to have my life impacted this way into old age.
God bless you!!

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@suzirtist Take lots of METHTHLCOBALAMIN. That's the fancy name for vit. B12. Or eat plenty of mussels. Yes they are the highest food source of B12.

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I have had 4 accupucture treaments so far. On 1st one my "good" foot had just started to get funky, the other was numb in areas etc (no pain Thank God). I have had 4 treatments now and would say YES its getting better. It does get worse somedays but overall it is working. Get a good thearpist that has studied IN CHINA or learned from somebody that has. I go to Alex Tan and he is 1/2 chinese and did his schooling in china. Man many clinics have folks doing it that know not WTH they are doing and its a waste. I refuse to watch needle play (even at dentist etc) and I wwill say out of maybe 130 pokes in lasst 4 treatments I felt one or two.

ACCPUNTURE WORKS. Not for everything all the time. I broke my neck as a young 20 someything and for 3-4 years had migraines like 3 times a month that would piut me on my back for hours. Mom talked me into it, went to her DR (who studied in CHINA) and had 3 treatments. Almost 4o years now and I have never had another. Wish it worrked so well for this neuropathy but it IS working so I will keep going.

Good Luck

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I'm surprised that no one has tried exercise for neuropathy pain. Just bounce your feet 15 times to speed up the circulation in your legs and your pain will stop. Also try taking your mind off your pain works too. Concentrate on learning something new like memorizing a song and sing it in your mind because you can have only one thing on your mind at a time. Look for more exercises on YouTube to go with bouncing your feet. I've had neuropathy since my 70's and just learned this recently. I'm 94 now and it works for me. Vyolet

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Profile picture for cit10jetjockey @cit10jetjockey

Save your money. There’s no treatment for PN, and there will never be any. The nerves are damaged and they are not going to heal. If you have pain, drugs help, then there are others who have no pain, they just stumble around. All you can do is live with it as it will never get better.

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@cit10jetjockey You are absolutely right. NO CURE AT ALL. I was diagnosed 5 years ago with PN, and my pain is gradually getting worse. Right now, for my pain is a buprenorphine 7.5 mg pain patch that I change every week (comes in a box with 4 patches). My pain doctor prescribed. Very expensive also. I had to have my insurer approval also. I'm now going to a high mg 10 mg. for the pain patch. Also have to have insurer approval before drug pharmacy will fill. The pain patch does help...takes the EDGE OFF so to speak. I'm quite use to hardly NO SLEEP. Now I'm having burning with my eyes. And, yes, PN can cause burning sensation in the eyes. I do keep close appmts with my eye doctor.

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Profile picture for kayejen @kayejen

@cit10jetjockey You are absolutely right. NO CURE AT ALL. I was diagnosed 5 years ago with PN, and my pain is gradually getting worse. Right now, for my pain is a buprenorphine 7.5 mg pain patch that I change every week (comes in a box with 4 patches). My pain doctor prescribed. Very expensive also. I had to have my insurer approval also. I'm now going to a high mg 10 mg. for the pain patch. Also have to have insurer approval before drug pharmacy will fill. The pain patch does help...takes the EDGE OFF so to speak. I'm quite use to hardly NO SLEEP. Now I'm having burning with my eyes. And, yes, PN can cause burning sensation in the eyes. I do keep close appmts with my eye doctor.

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@kayejen Try the drug amitriptyline, I have been taking it for more than 10 years now.

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Profile picture for cit10jetjockey @cit10jetjockey

Save your money. There’s no treatment for PN, and there will never be any. The nerves are damaged and they are not going to heal. If you have pain, drugs help, then there are others who have no pain, they just stumble around. All you can do is live with it as it will never get better.

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Profile picture for tedkaplysh @tedkaplysh

I do not believe that there is anything that will reverse the damage i.e. regenerate the nerves. However, at the suggestion of an internist who believed the PN to be idiopathic, I have been taking B-6, Folate and B-12 for years solely to hopefully prevent further damage to my nerves.

NB. I have not experienced pain just numbness.

I am considering adding B-1, or an equivalent, and possibly other supplements to enhance the effect of the above named supplements.

To improve balance I wear professionally created firm inserts (to address my congenital flat feet) and have finally found a pair of low profile hiking shoes that are comfortable, attractive and stabilizing. Together they have improved my balance and lessened the pain I have in one knee because of bone-on- bone. This has become my go-to pair of shoes for outdoor and indoor wear.

I also do balance exercises and never go bare foot.

Ted

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@tedkaplysh Thats funny because I always go barefoot because shoes make my toes go to sleep. I take Alpha Lipoic Acid for my PN. I also am going thru a new treatment called Battlefield acupunture. it seems to help with the fogginess and some with the balance, but mostly (50%) better are my hands. they still go numb, but not near as often.
I have also found that finding a Dr. that has really studied PN, is like looking for a pin in a haystack. I've gone thru 3 so far. One told me to stop taking my COPD meds, the last one told me that I have carpel tunnel in both wrist is all.

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@bb0753
I wander how going to the right to try format is going to help Winsantor. Seems like it will just create more barriers being as you have to travel to Montana. I wander if theyve done any research on how many people would be interested in doing that. They also mentioned right to try programs six years ago on their facebook page. Its starting to get pretty annoying

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I'm 84. Gabapentin 300 mg two or three times a day works for me. I'm slightly wobbily but doing fine otherwise. I had a bit of idiopathic PN, then when I had chemo for breast cancer 5 years ago it developed further.

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