Mayo Clinic diagnosis of Gammaglobulin deficiency: Any tips?

@naturegirl5 My immunologists nurse manager wants the same for me, that you do! She said that she wants all the arrangements to go smoothly for me, where all I have to do, is just show up for the infusion treatment! She is really sweet and nice to me! I had just recently got out of hospital, for a heart implant operation, and have recently been through some scary, stressful episodes of atrial fibrillation! So she knows that I’ve had a rough road to hoe ( so to speak ), lately, with a lot of drama, so a smooth slide into infusion treatment and drama free, would be a nice change, for me! I will let you know hiw the treatments are going! Thanks for your supportive advice!

@naturegirl5 Hello! I have a very positive follow-up! Medicare and my secondary insurance will pay the full $4000.00 plus cost, of each infusion for me! i had my first infusion on Monday, April 27,2026! I had no side effects, and I actually felt joint pain easing up, after the infusion! I am scheduled to have these infusions every 4 weeks! Thanks again for all you do, to help us, who participate in Mayo Clinic connect! You are deeply appreciated! 🤙

@foundryrat743 Thank you for the feedback. Isn't it great to know that Medicare and your supplemental will pay the entire cost? Your nurse immunologist's nurse manager is an angel. I'm so happy to hear that this is all going smoothly for you. 🌷

@naturegirl5 Indeed, and I give you a lot of credit for envouraging me, and helping me to find a way, going forward! With each infusion costing $4000.00, it is daunting, to worry about, who’s going to pay! I’m going to send the Nurse Manager a 💐 bouquet of flowers, as a thank you gift! After the first infusion, already I’m feeling a bit better. Thanks again for being so supportive!

fatigue isn’t so decimating!

@foundryrat743 You're very welcome. It's so nice to hear back that my encouragement was helpful to you. It's so kind of you to send the nurse manager a bouquet of flowers as thank you gift. It also will be something to share with the immunology office too!!

@naturegirl5 Yes, I was thinking the same! Flowers will be sent thanking the Dr. and nurse manager, by names, along with office staff ( at the immunologist’s office )! Had all of them not helped me, and I didn’t get the infusion’s set up, I truly don’t know what I would have done! I was super uptight about setting up payment for this extremely expensive therapy, that was not affordable for me. One medicine supplier had rejected my application already, and I had lost Medicare Advantage coverage at the end of 2025, and did not have secondary insurance coverage, in the first month or so, of 2026, because millions of applicants were in the same boat, so to speak, and the insurance company that I had signed up for, in November, was inundated with applications, so processing was delayed, and coverage, when it was approved, was not retroactive to start on Jan. 1st, 2026. That loss of coverage, for January, 2026, was a nightmare for me, and I still have not recovered, financially, from that! So, I’m so thankful this came through, in my favor. I had even talked to my granddaughter about setting up a ‘Go Fund Me’ project, cause I didn’t feel that I had any other options! Thanks again for all you have done for me, in this forum!! 💐

@foundryrat743 What a nightmare with Medicare. The time period in which the insurance company with Medicare supplemental informs a person that they are no longer covered and the time period to find and sign up with a new insurance company is just not enough time. So then you were without supplemental coverage for the beginning of 2026 - that should never, ever happen, and yet it did. I can understand now what a mess all of this when trying to set up the medication prescribed by your immunologist. It's fortunate that you have such angels in the immunology office, especially the nurse manager, who navigated this mess with you. Your situation in which a professional who "knows" the medical system and how to deal with insurance is key.

Thank you for sharing this and letting us all know what can and did happen within the Medicare system.

My husband and I are both on Medicare. When we were trying to figure out how to sign up and what the options were I said - "We are reasonably intelligent and have how many advanced university degrees This system is not made for mere mortals like us!!" Navigating Medicare and really all insurance in the U.S. has nothing to do with one's profession or capabilities. We all need advocates like your Nurse Manager.

I live in the far north and my spring flowers are just starting to bloom. Isn't there something delightful and lovely about these flowers in Spring? 🌷🌼

For those with gamma globulin deficiency, what were your lab numbers for gamma globulin that led to it being diagnosed and treated? Thanks!

@naturegirl5 Absolutely correct, and also, educational qualifications of patients didn’t make any difference, in reference to getting my Medicare Supplemental Insurance in time for the January 1st deadline! I majored in psychology, having gone full time, 6 years of college/university, and had signed up for supplemental immediately when I got the notice, that, because of administrative decisions, my Medicare Advantage coverage, along with millions of other people, would be terminated December 31,2025. I signed up in November, for the supplemental. When I had to have an ‘urgent’ MRI in early January, 2026, the hospital ( not a Mayo related hospital ), wouldn’t proceed with doing the scan, until I paid the supplemental insurance
‘would be’ cost, which I, of course, paid right away! Symptoms of mine, indicated necessity of the MRI! One of the surprises that I got from the MRI results, was that I had two lacunar strokes, one recent, which explained my mobility and loss of balance symptoms. Other results were indicative of investigating for an immune disorder, which is why I am where I am at now, in my quest for improving my health! I live up North, in a Northern State, and flowers and buds on trees are just beginning to come out! I love Spring, and I love flowers! I used to have a quarter acre flower garden, on my Victorian House property, about 15 years ago or so! People came from surrounding areas to see my Century Home makeover, and my professionally designed, and implemented flower gardens, with a beautiful fountain, and ‘craft’ house! Unfortunately, because my wife and I were having major health problems, our Physician son-in-law, and BSN Nurse daughter, moved us from our small town, to a major regional hospital city, where my son-in-law practiced hospital medicine, and was the Director of the Hospital’s Medical Residency Program! There, we got the needed specialists care! We moved to a small, single story home, with a beautiful lot, overlooking a forest, where we’ve seen bears, mountain lions, jaguars, deer, and other wildlife, some from our backyard. I have a few flowers and a couple small gardens, that are easy to keep up! I have a handyman, who helps me with year round outside tasks. Our downsizing works for us, and we are thankful that we can still basically take care of ourselves, in our own home, at our age!

@fairn My IGG-478mg ( low). My IGM-25mg ( low ). My RBC- ( 4.17. x 10 x 6/mcl. ( low ). My HGB-12.5g/dlc ( low ). My HCT-37.8 ( low ). My Mean Platelet VOl.-8.9 fl ( low ).