CRPS - What to expect? How to cope / quell my worries?

Hello! I am a 15 year old who recently (late February) got diagnosed with Complex Regional Pain Syndrome. I’ve been in intense, nonstop pain in my foot since August-September and absolutely nothing has worked for me. They put me through millions of tests and doctors (obviously exaggerating, but it was a lot) and only in nearly March did they find out it was CRPS (because everything else said nothing, so process of elimination). I’ve honestly been really upset with the diagnosis. I’ve been told CRPS is not curable, that it’s something you;re stuck with your whole life and has no cure but can be treated to be “manageable”. What is considered manageable? I’m just kind of scared in general because I don’t know what to expect, I haven’t had anything done since my diagnosis and everything else I’ve tried has failed (Physical Therapy, medication for both pain and nerves (though they wont put me on proper pain killers), and pretty much everything I can do for myself at home). I have an appointment with UNC in May but I don’t even know if they’re treating me there or what and I’m just generally kind of scared. To other people with CRPS, what should I prepare for? Am I gonna be in pain for the rest of my life? Am I gonna be able to be a normal kid again and ditch my cane or be able to be active? How do I cope with this?? Anything helps. I’m sorry if any of this doesn’t make sense or is stupid.