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← Return to Medications for treatment of Factor V Leiden Homozygous
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Medications for treatment of Factor V Leiden Homozygous
Blood Cancers & Disorders | Last Active: May 1 1:19pm | Replies (13)Comment receiving replies
@aycan Thank you for sharing your experience.
I understand that Factor V Leiden can sometimes remain “silent” for decades and only become apparent later in life when additional risk factors come into play.
In my case, DNA testing confirmed that it’s genetic.
Are you being followed by a hematologist? It might be worth discussing testing for Lupus (or other clotting-related conditions) with them before reducing the dose of Rivaroxaban.
Also, have your vitamin K levels been checked?
Replies to "@aycan Thank you for sharing your experience. I understand that Factor V Leiden can sometimes remain..."
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@swalex
Thank you for your questions and suggestions.
From the beginning I was tested for Lupus (Russell or anticoagulant testing) several times; always within range. I think the Vitamin K was covered in the PTT test. Other frequent tests include omocistein, D-Dimer, Ab antinucleo IgG (tested positive), Ab anticardiolipine IgG and IgM and choresterol.
I think my case is also genetic.
I am principally in the care of an angiologist.
The plan is to reduce the dose of Rivaroxaban in 1 month. So any further insights I gain in this period will help me to decide. My main motivation is the reduced risk of bleeding. My doctor is favorable, but I sense cautiously!