Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

John, Volunteer Mentor | @johnbishop | Mar 12, 2018

In reply to @tonyagann "I have ICD and l can't l that test. Is a CT scan of the brain..." + (show)

Hello @tonyagann -- welcome to Mayo Connect. We are glad you found us. I have no medical training or medical background but I think your question is best asked of your doctor. It is a good question. I did find some information here that may give you some helpful information.

American Heart Association -- Devices that may Interfere with Implantable Cardioverter Defibrillators (ICDs):
-- http://www.heart.org/HEARTORG/Conditions/Arrhythmia/PreventionTreatmentofArrhythmia/Devices-that-may-Interfere-with-Implantable-Cardioverter-Defibrillators-ICDs_UCM_448464_Article.jsp#.Wqcq6GobOUk

CT Appears Safe in Patients With Pacemakers, ICDs:
-- https://www.medpagetoday.com/cardiology/arrhythmias/44503

John

tonyalgann | @tonyagann | Mar 12, 2018

My question is what tests can you take to find out about neuropathy? I have it l take Gabapentin for it. It works but am concerned about the weight gain. So l just take night and it works but l was taking it three times 600 mg. So that is my new question. Thank

tonyalgann | @tonyagann | Mar 12, 2018

In reply to @tonyagann "I have ICD and l can't l that test. Is a CT scan of the brain..." + (show)

Thank you..l did talk my Dr. I just wanted to another person perspective on the situation. I thought that this was a place you could ask questions or ask somebody for their possible opinions on stuff of issues of neuropathy. I just wanted to know how other people live with it and what are some of the things they do to take away the discomfort thank you for your information. I will not ask that question again of you I just wanted to know how other people live with it and what are some of the things they do to take away the discomfort. Thank you for information. I will not ask that question again of you.

tonyalgann | @tonyagann | Mar 13, 2018

In reply to @tonyagann "I have ICD and l can't l that test. Is a CT scan of the brain..." + (show)

Thank you for the great information.

tonyalgann | @tonyagann | Mar 13, 2018

In reply to @tonyagann "I have ICD and l can't l that test. Is a CT scan of the brain..." + (show)

Thank U John.

John, Volunteer Mentor | @johnbishop | Mar 13, 2018

In reply to @tonyagann "My question is what tests can you take to find out about neuropathy? I have it..." + (show)

The test is an Electromyography (EMG).

EMG (Electromyography): About your Mayo Clinic Test - YouTube
-- https://www.youtube.com/watch?v=dXEqCf_ksJE

John, Volunteer Mentor | @johnbishop | Mar 13, 2018

In reply to @tonyagann "My question is what tests can you take to find out about neuropathy? I have it..." + (show)

Hi @tonyagann, weight gain can be a problem with many autoimmune diseases. As hard as it may be it does take a combination of lifestyle changes in diet and exercise to help with that. The Foundation for Peripheral Neuropathy has some good information to help with that on their website here:

-- https://www.foundationforpn.org/living-well/

John

John, Volunteer Mentor | @johnbishop | Mar 13, 2018

Just read an interesting article in the Science Daily - Gluten-free diet may help people with neuropathic pain.

-- https://www.sciencedaily.com/releases/2018/02/180228160432.htm

John

venki | @venki | Mar 13, 2018

In reply to @tonyagann "My question is what tests can you take to find out about neuropathy? I have it..." + (show)

Regarding Neuropathy problems the Nerve Conduction Test & Doppler test may be taken so as to find out whether we are having peripheral neuropathy or Ulnar neuropathy problem. I am having Ulnar neuropathy problem which makes my movement difficult. Neurologist didn't prescribe direct medicine. I am taking only Lipitab & Ecosprin. Peg SR. Pl.consult Neuro & take as some medicines may trigger dizziness which I underwent .