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ET CALR looking at heart surgery
Blood Cancers & Disorders | Last Active: 9 hours ago | Replies (101)Comment receiving replies
@loribmt Thanks. Looks like the mitral valve people live in this group, so I am following: https://connect.mayoclinic.org/group/heart-rhythm-conditions/
I will post again here if there is anything else germane to ET that people might find helpful. Bottom line seems to be that you can be 71, have ET for many years and be on hydroxyurea, and still be seen as a decent surgical risk.
Replies to "@loribmt Thanks. Looks like the mitral valve people live in this group, so I am following:..."
Facing open heart surgery, you're making it a teaching opportunity for others.
You're one in a billion, jean.
It seems doubly unfair to hear you need this procedure, AND that it's not going to be a miracle cure. You have already had ENOUGH medical stuff!!!
As Lori notes, it's great that the doctors are working together. Your plan to get your PCP's advice is excellent.
You've made yourself a world-class expert on ET. You can master this too, jean.
We would all like to hug you, but we can't. So please be extra nice to yourself.
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@nohrt4me I hope you find some helpful and reassuring information with the mitral valve group!
That’s not one of the groups I routinely follow but I certainly want to be part of your support system in any way that I can. So yes, please share what you find out along the way! Hugs!