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nohrt4me (Jean) avatar

ET CALR looking at heart surgery

Blood Cancers & Disorders | Last Active: 15 minutes ago | Replies (35)

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Profile picture for Lori, Volunteer Mentor @loribmt

@nohrt4me Wowzee, Jean…that’s some news! Heart issues are way out of my wheelhouse so I can only commiserate with you, my friend. Tiz a lot of information to take in and process.

If there is the possibility of imminent heart failure then I think the writing is on the wall and there’s not much of a choice. Especially with the cadre of specialists all coming to the same conclusion. With the comments made, it appears they feel you’re young and healthy enough to tolerate the heart surgery. Obviously, you’d prefer the less invasive option but if that’s not really medically in your best interest that’s hard to argue with.

You might guess that there are a lot of conversations in Connect for Aortic Valve replacements.
Here is one discussion to get you started by one of my fellow mentors, Teresa @hopeful33250
https://connect.mayoclinic.org/discussion/aortic-valve-replacment/
More found here: https://connect.mayoclinic.org/search/

Wrapping you in a gentle hug this morning…lots to think about.

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Replies to "@nohrt4me Wowzee, Jean…that’s some news! Heart issues are way out of my wheelhouse so I can..."

@loribmt Thanks. Looks like the mitral valve people live in this group, so I am following: https://connect.mayoclinic.org/group/heart-rhythm-conditions/

I will post again here if there is anything else germane to ET that people might find helpful. Bottom line seems to be that you can be 71, have ET for many years and be on hydroxyurea, and still be seen as a decent surgical risk.