Hi everybody, I have peripheral neuropathy in my feet and recently I fell ill with an Upper respiratory infection. My fever went to 103 but I noticed that while I had fever my neuropathy pain subsided. I have recovered and the first day with normal temperature, I have noticed that the neuropathy pain and numbness has returned. This isn't the first time it has happened. About a year and a half ago, same thing URI with fever and no neuropathy pain. In fact, the one day side effect from the Covid shot, I had fever yet no neuropathy pain. Maybe it's an immune system working harder, who knows. Any similar experiences?? Wishing good health to everyone!

John, I'm new and looking for a topic list, help.

I was diagnosed with Neuropathy in 2008. Numbness creeping up my legs, but the pain in my left foot dictates how much I walk. In the last three years, I've gone from walking a mile every other day and freely walking our house to measuring my steps each day. I'm on medical cannabis - pills, salve, and vaporizer (inhaler / ecig) and Lyrica. I use three different massagers for my foot. I take a motorized cart whenever possible. I've tried Gabapentin, but the cannabis,
Lyrica, and leg/foot massages help me the most. My dad had this and my brother has a very mild case of neuropathy. I'd appreciate any tips, treatments, or exercises that have helped others. Thanks!
Andy

could I join your group?
I have Idiopathic progressive polyneuropathy so reading your stories sure gives me insight as to what to expect as time goes on.
Regards,
Jack Buchter

Thanks so much for this group. Until I got the Mayo email, I had no idea there was a support group!

Thank you - I'm looking forward to receiving the information.

I was born with CMT [CHARCO MARIE TOOTH] .CMT is a progressive neuromuscular disease that damages the peripheral nerves,creating muscle atrophy, sensory loss and disability. CMT affects an astounding 3 million people of all ages worldwide. There is currently no cure for CMT. My legs and hands are severely affected. I wear braces on my feet and legs that helps with drop foot and enables me to stand for short time. The burning from the Neuropathy and the muscle spasms are of course worse at night or when the weather changes in any way.

John: I am Susan Schloth & a member of this Neuro group. Colon cancer in remission simce 3/24. Living in Ecuador many years, U.S. expat. Please add me. MUCHAS GRACIAS! Susan

I have always had poor balance because of a congenital defect that left me with one leg 2 cm shorter than the other. Now with the PN, it's even worse. I'm 81 years old and my biggest fear is falling. I worked in a long-term hospital and I have seen what a simple fall can lead to. I'm especially fearful of turning or changing direction. Like so many with PN, I have diabetes. However it is well controlled. I'd like to hear what others are doing about footwear and socks, also exercises to maintain blood flow because I sit alot.

Well, I’ve said my story all over the place. With a lot of different groups here in these chat rooms 2 1/2 years ago I didn’t know what neuropathy was, now I must say sadly I am well-versed in all of its complications. I learned about medicines. I’ve never heard of therapies than some cases. and in most cases, don’t do a damn thing. Hopefully, I have help open up discussions on the psychological effects of neuropathy, which I truly believe have an impact a very large impact on the physical aspects of this disease. We are all on a path, though different in many ways, the same, and it is my hope that someday there will be more answers than questions. I think I’m gonna take a break for a while cause real realistically not many of these post lift my spirits all the best I’ll be back.