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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Thank you Colleen and Mayo Connect!
@jimhd @bburleson1 @swiss @hollander @fonda @gratefulone @mikween @aliskahan @grandma41 @rabbit10 @ujeeniack @gailfaith @ridgerunner @joannem @medic7054 @fleure @beckypain66 @philio66 @peggyj4411 @16jody @twinky @martid @grandma41 @pinkmk @crystalgal @gman007 @mari @amkaloha @bobsconnect @salena54 @robertlclark @upnorthnancy @tonyc55 @painwarrior @ladyjane85 @bobe @dbentley @pgjanes @citylady @mfobrien36 @timmckinney @briansr @superwife – Welcome to our new Neuropathy Group!
Our peripheral neuropathy discussion has grown quite large making it a challenge to find the information. We hope our new Neuropathy Group will make it easier for members to find a relevant discussion to ask their questions and share information. If you don’t find a discussion that meets your need then jump right in and create a new one! Be sure to invite other Connect members to join you. Inviting is easy, just tag a member by using their Connect member name which starts with an “@” sign.
The new Neuropathy Group is your community so let’s help each other by sharing your story, asking questions, and learning while we figure out how to deal with our specific type of neuropathy.
John
Replies to "Thank you Colleen and Mayo Connect! @jimhd @bburleson1 @swiss @hollander @fonda @gratefulone @mikween @aliskahan @grandma41 @rabbit10..."
John, I'm new and looking for a topic list, help.
I was diagnosed with Neuropathy in 2008. Numbness creeping up my legs, but the pain in my left foot dictates how much I walk. In the last three years, I've gone from walking a mile every other day and freely walking our house to measuring my steps each day. I'm on medical cannabis - pills, salve, and vaporizer (inhaler / ecig) and Lyrica. I use three different massagers for my foot. I take a motorized cart whenever possible. I've tried Gabapentin, but the cannabis,
Lyrica, and leg/foot massages help me the most. My dad had this and my brother has a very mild case of neuropathy. I'd appreciate any tips, treatments, or exercises that have helped others. Thanks!
Andy
could I join your group?
I have Idiopathic progressive polyneuropathy so reading your stories sure gives me insight as to what to expect as time goes on.
Regards,
Jack Buchter
Thanks so much for this group. Until I got the Mayo email, I had no idea there was a support group!
Thank you - I'm looking forward to receiving the information.
I was born with CMT [CHARCO MARIE TOOTH] .CMT is a progressive neuromuscular disease that damages the peripheral nerves,creating muscle atrophy, sensory loss and disability. CMT affects an astounding 3 million people of all ages worldwide. There is currently no cure for CMT. My legs and hands are severely affected. I wear braces on my feet and legs that helps with drop foot and enables me to stand for short time. The burning from the Neuropathy and the muscle spasms are of course worse at night or when the weather changes in any way.
John: I am Susan Schloth & a member of this Neuro group. Colon cancer in remission simce 3/24. Living in Ecuador many years, U.S. expat. Please add me. MUCHAS GRACIAS! Susan
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Hi everybody, I have peripheral neuropathy in my feet and recently I fell ill with an Upper respiratory infection. My fever went to 103 but I noticed that while I had fever my neuropathy pain subsided. I have recovered and the first day with normal temperature, I have noticed that the neuropathy pain and numbness has returned. This isn't the first time it has happened. About a year and a half ago, same thing URI with fever and no neuropathy pain. In fact, the one day side effect from the Covid shot, I had fever yet no neuropathy pain. Maybe it's an immune system working harder, who knows. Any similar experiences?? Wishing good health to everyone!