I have been living with peripheral neuropathy off and on for 20 years after a bout with transverse myelitis which was diagnosed at John Hopkins. Ten years ago and five years ago redid MRIs and was diagnosed with idiopathic neuropathy but luckily no further lesions. Have done pretty well with 1100 mg of gabapentin until the last month and cannot seem to get much relief even with close to 2000. Happy to find this group to hear how others manage PN.

I have peripheral neuropathy and it’s getting worse. In fact I have autonomic peripheral neuropathy. I have no pain. But I can barely walk. I fell today. My balance is terrible. What do you people do. Is there any relief from this

Please respond does the injection of Wharton's Jelly cure Neuropathy?

I have had the burning in my buttock and feet since I had back surgery approx. 7 yrs. ago. I have been to many doctors and clinics to no success. Ice does help and then I take percocet with gabapentin . I always get up each morning and run cold water over my feet or soak them in cold water. That does seem to help too. When this doesn't help I'm am in tears. Very hard to sit.

Thank you all so much for your kind & helpful replies. My emg report came today, means nothing to me. 1. NCS showed abnormalities of the bilateral sural sensory response. 2. EMG testing showed CRDs of the left IP muscle.
3. Sensory neuropathy. Thanks for any input you might have!!!

What I have learned so far on my journey. Peripheral Neuropathy is what I call a "hodge-podge" disease because every patient gets a mixture of different symptoms depending on what type of nerves have been affected (motor, sensory, autonomic) It seems like each patient has to find a "hodge-podge" recipe to help relieve their pain and other symptoms. Patients have to work together and share notes and experiences of what remedies have helped them. Thats why we have all signed up on Mayo Clinic Connect. Pain Specialists can only do so much by Rx pharmaceuticals. I just figured this out. I want to thank everybody in this group for all their feedback and ideas of how to manage all the different types of symptoms.
Thank you 👱‍♀️

Sounds good. I have been living with this for yrs. I’ve also been on every med meant to treat or relieve the symptoms, no luck. The only thing that made it manageable was 1 800 mg gabapentin and 1 10mg pill of percoet. I’m also a veteran so the va is no help when it comes to pain meds. 2yrs ago I had a hf10 implant again zero results. Now my new pain management person put me on naltrexone and expects me to wait 6 months to see any kind of relief🤬🤬🤬. I understand the Opidiod addiction/crisis. I just feel like every doc now is covering their as& when it comes to pain meds. Sorry if I offended anyone. Just being honest and need to vent.

Is there a cure for neuropathy?

I have just moved from the foot numbness/tingling stage to a point where the sharp, severe pain arrives mid-sleep hours. PCP prescribed gabapentin without much success. Now I rub capsaicin on painful areas and get enough relief to get through the night. No problem -- so far -- during the day. Any suggestions as to how to ward off increasing problems with this PN? Age 89 with routine arthritis but otherwise in OK health.

Glad to join up, thank you. Noticed a bit of numbing under the toe pads, fingers too , beginning a few months ago. Now the doctor has me on Metanx the last month. Not sure it's helping yet. It seems to be progressing a bit....ugh.