Does anybody have experience with SANEXAS for neuropathy?

Posted by knucklehead4352 @knucklehead4352, Jan 6, 2021

Does anybody have experience with SANEXAS. It is touted as Electric Cell Signaling Treatment especially for peripheral neuropathy.

Interested in more discussions like this? Go to the Neuropathy Support Group.

I found out SFN and peripheral neuropathy is constricting blood vessels...thus poor blood circulation....resulting in all kind of bad symptoms ( feet numbness, burning, pain, fatigue etc)
I've tried different equipment and ended up with Sanexas which help with legs veins blood pumping back up ....doing it every morning and feel way better..
Also, I brought down my blood sugar that was causing me SFN...

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Profile picture for valyruss @valyruss

I found out SFN and peripheral neuropathy is constricting blood vessels...thus poor blood circulation....resulting in all kind of bad symptoms ( feet numbness, burning, pain, fatigue etc)
I've tried different equipment and ended up with Sanexas which help with legs veins blood pumping back up ....doing it every morning and feel way better..
Also, I brought down my blood sugar that was causing me SFN...

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Hey , thx for sharing Sanexas info . Is that something you plug up ? Thx , Bon

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Profile picture for valyruss @valyruss

I found out SFN and peripheral neuropathy is constricting blood vessels...thus poor blood circulation....resulting in all kind of bad symptoms ( feet numbness, burning, pain, fatigue etc)
I've tried different equipment and ended up with Sanexas which help with legs veins blood pumping back up ....doing it every morning and feel way better..
Also, I brought down my blood sugar that was causing me SFN...

Jump to this post

Hi @valyruss, You will notice that we merged your discussion with an existing discussion related discussion so that you can meet other members who have experience with Sanexas. If you click the link below it will take you to the beginning of the discussion so that you can read what others have shared.
-- Does anybody have experience with SANEXAS for neuropathy?: https://connect.mayoclinic.org/discussion/sanexas/

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Profile picture for Amanda Roe @amandajro

Hello @knucklehead4352 and welcome to Mayo Clinic Connect. I understand you are interested in hearing from members with experience with SANEXAS. I did a quick search on the site and found the following comments that you might find helpful by @erikas @dont
https://connect.mayoclinic.org/discussion/shingrix/
https://connect.mayoclinic.org/discussion/just-diagnosed-2/
Do you have PN and where did you come across information on SANEXAS, if I may ask?

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@amandajro Hello, Just joined this group today so thank you for the welcome. I was diagnosed with 'Small Fiber Neuropathy with Autonomic Involvement' in 2016. At least my neurologist's nurse said: "Your notes indicate this is the nearest diagnosis that matches your symptoms at this time". Since then, the stinging and burning pain is spreading from both buttocks (worst pain which prevents me from sitting for more than a few minutes and has destroyed my social life and travel) to all limbs, face and eyes. Regarding Sanexas Electrical Nerve Stimulation, a new clinic opened up in my area claiming it is a "new treatment for neuropathy. It is a more natural, non-invasive, painless and effective therapy. Instead of covering up the symptoms with harmful drugs that can lead to dangerous site effects, this cutting-edge approach focuses on healing the damaged nerve endings, Sanexas Treatment will work to stimulate the body's tissues at the cellular level. This treatment energizes the mitochondria and speeds up the healing process of the damaged nerves and the tissues surrounding them. Sanexas Treatment also increases the oxygenation of injured tissue as well as increases cellular function." I'm skeptical so ran it by my physician who said it looks reasonable but unlikely to help you but it won't hurt to give it a try so as they offer a free consultation I thought I would visit them and check it out.

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Profile picture for bwin11 @bwin11

Going for 11th treatment today. No significant improvement to date and some days symptoms worse.

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@bwin11 Sorry to hear that - it sounds like my physician was right when I asked him about the treatment when he said "it sounds reasonable to try it but unlikely to help you".

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Profile picture for duquer @duquer

My Journey to Sanexas
by Ralph Duquette

Hello there, and thanks for allowing me to share my story with you all. I am sorry that it is a little bit long, but I needed to let you know the long road I was on.

Every year since I was born, my birthday was a special day for me. As a child, and as I grew to be 60 years old, it was always my special day off!
However, on my 61st birthday, what started out as my special day, turned into the realization that my 41 year career as a professional health care worker was over and my next career would be as a “professional patient.”

My doctor diagnosed me (on my birthday) with severe AML leukemia and that there was a bed waiting for me 90 miles away in Boston, Massachusetts. I was heading toward the most challenging journey of my life. Within a month later, following the first round of chemotherapy, I was found unconscious, coded, suffering severe neurological defects, and I was placed on a ventilator for three days. It would take another two months for me in a Rehabilitation Center for me to then come home with an expiration date of less than six months, which by the way was extended twice!

I finally arrived home, 3 months later in an ambulance and dumped in my bed. I found myself wearing diapers, a feeding tube inserted in my stomach, taking 16 different medications, and needing 24/7 care. My arms and legs were totally useless. To be honest, I knew that I was heading towards the end of the line and I couldn’t wait to get there. I had visiting nurses, therapists, clinicians, social workers checking up on me and the list went on and on. During the year 2013, I was rushed to the hospital eight times. I was encouraged to go to hospice several times, however, I figured if I was going to check out, I was going to check out at home!

Fast forward 2 1/2 years later and the doctors, who were sure the leukemia would come back, were all wondering why it didn’t!

This was me then!
In October 2015, my daughter got married.
Please see the video.


It had been 10 months since my daughter's wedding video went viral. During that time I continued to be in and out of hospitals and rehab facilities and tried all kinds of different medications with their usual side effects. I finally got to see the top neurologist in my area in July 2016, and after having all kinds of lab tests, x-rays, and an EMG, I finally got a formal diagnosis called “severe axonal sensorimotor polyneuropathy.” If you ever have had Novocaine for dental work, imagine your whole body feeling that way permanently! She also informed me that “there was no cure, just medication for the numerous symptoms but I would have to live the rest of my life with it.” The neuropathy affected my balance, my ability to feel anything, and the whole experience left me with off and on tremors. I was falling at least twice a month. I needed help entering and leaving a car. My family purchased a wheelchair adaptable van that could carry my battery powered wheelchair because of the need to use a wheelchair in open spaces.

From that point forward, it was just me and my iPad. Every day while lying in my bed I would search the Internet for all of the information about my neuropathy. I found several clinics throughout the United States that offered life changing stem cell therapy or medications for my condition. I would spend hours each day talking to different clinics, hospitals, doctors offices throughout the country. I sent countless copies of my medical records out to these places in hopes that someone could help me. I even went to see a doctor whose practice is in a dark windowless basement of a commercial building in New Hampshire, and he only takes cash! Now that’s not fishy at all! I tried different drugs, gabapentin, B12, celexa, Nortriptyline, Lyrica and also several over-the-counter neuropathy drugs. Nothing worked, and the side effects were unbearable. I even tried acupuncture during the summer, the side effect?, I slept through them!

Since I am not able to hold a newspaper, I read the local paper on my iPad, and one day in January, 2021, I spotted a small ad from a brand new business in WIndham, Maine called Nulife Wellness, that appeared to be a letter written just for me and my condition. I hurriedly called the phone number and made an appointment with Sara Doyon, a family nurse practitioner, and received a half hour treatment from a machine that looked like a big TENS unit, but it is much more than that! A TENS machine is like a X-ray and RST SANEXAS neoGEN device is like getting a MRI. More powerful frequencies and over 20 different treatment programs designed for acute and chronic painful conditions.

It had lots of electrodes that sent electrical impulses through the skin with the goal of regrowing nerves. It was not at all painful, just a soothing electrical massage to my legs, however the cold and snow of winter delayed my continuation of treatments.

I restarted treatments by going twice a week through March and April. During that time I experienced no results. I was desperate and began to think that nothing could help me, and that it was time to permanently discontinue them. On the last Thursday of April, I went home thinking that this would be my last treatment.

I had made my decision that when I awoke the following morning I would call and cancel further treatments. That night while asleep following a day treatment I was awakened by the extreme discomfort and heaviness of both my legs. My legs felt like I had run a 26 mile marathon. It was then that I realized why they felt that way. I was experiencing nerve regrowth! The treatment finally woke up my legs! I was actually feeling pain for the first time in 8 years! As much as they hurt real bad, I knew why! It was at that point that I realized I was on to something. In the morning I called Sara and told her the good news, and I continued my treatments with her right through the month of June.

Due to the fact that I was showing signs of improvement, Sara called the company that manufactures the machine to let them know how well I was progressing. The name of the company is RST-SENAXAS which is located in Las Vegas. In July, I decided to make a few appointments for further treatments with them during the middle of August. Since then, there have been several more improvements in my regaining mobility. As I write this, it’s been five months since my last fall.

I have suffered with polyneuropathy for 9 years and (I've been) trying to be more independent. I want to make it real clear that this machine is by far the best treatment I have undertaken that reduces the symptoms of absolute stiffness and increases sensations in my limbs. It is not yet a cure, but a real treatment! We have to keep in mind though, nerve regrowth is a process that does not occur overnight, it takes time! With me it took over 15 treatments before experiencing it.

The road to Sanexas has taken me nine long years and I have this tiny feeling get it?, that my future is going to be a lot brighter!

PS: comments are always welcome🤗

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@duquer How amazing for you! It sounds like the model of the machine was key - so do you think that now, years later, they are still around or are the new ones smaller and just as effective?

REPLY
Profile picture for Reg @metwo

@amandajro Hello, Just joined this group today so thank you for the welcome. I was diagnosed with 'Small Fiber Neuropathy with Autonomic Involvement' in 2016. At least my neurologist's nurse said: "Your notes indicate this is the nearest diagnosis that matches your symptoms at this time". Since then, the stinging and burning pain is spreading from both buttocks (worst pain which prevents me from sitting for more than a few minutes and has destroyed my social life and travel) to all limbs, face and eyes. Regarding Sanexas Electrical Nerve Stimulation, a new clinic opened up in my area claiming it is a "new treatment for neuropathy. It is a more natural, non-invasive, painless and effective therapy. Instead of covering up the symptoms with harmful drugs that can lead to dangerous site effects, this cutting-edge approach focuses on healing the damaged nerve endings, Sanexas Treatment will work to stimulate the body's tissues at the cellular level. This treatment energizes the mitochondria and speeds up the healing process of the damaged nerves and the tissues surrounding them. Sanexas Treatment also increases the oxygenation of injured tissue as well as increases cellular function." I'm skeptical so ran it by my physician who said it looks reasonable but unlikely to help you but it won't hurt to give it a try so as they offer a free consultation I thought I would visit them and check it out.

Jump to this post

@metwo ...I can help with this...diagnosed with SFN in Jan.2022...burning, needles and pricks, electrical current in my legs, pain, numbness at extremities ( both feet and hands)...did Sanexa treatment along with B12 shots straight in my feet for three month...It did help but the treatment is very expensive and Medicare not paying for it...I ended up buying Sanexa equipment from eBay on my own and use it any other day exactly per the protocol from the clinic that treated me. Besides, I'm also type 2 diabetes and taking this vitamins regimen:
1. Benfotiamine (300mg–600mg) …
It specifically stops the sugar-induced damage (glycation)
2.Ultra-Micronized PEA (1200mg) …
PEA is what will actually help dampen that all-day burning sensation.
3.ALA Dose Adjustment…
600mg of Alpha-Lipoic Acid (ideally on an empty stomach) is the standard clinical dose for reversing diabetic nerve conduction delays.
4.The B12 Bypass…
Switching your B12 to a sublingual (under the tongue) format to ensure it gets past the Metformin "wall" in your gut.
Hope this help.....
-

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Profile picture for valyruss @valyruss

@metwo ...I can help with this...diagnosed with SFN in Jan.2022...burning, needles and pricks, electrical current in my legs, pain, numbness at extremities ( both feet and hands)...did Sanexa treatment along with B12 shots straight in my feet for three month...It did help but the treatment is very expensive and Medicare not paying for it...I ended up buying Sanexa equipment from eBay on my own and use it any other day exactly per the protocol from the clinic that treated me. Besides, I'm also type 2 diabetes and taking this vitamins regimen:
1. Benfotiamine (300mg–600mg) …
It specifically stops the sugar-induced damage (glycation)
2.Ultra-Micronized PEA (1200mg) …
PEA is what will actually help dampen that all-day burning sensation.
3.ALA Dose Adjustment…
600mg of Alpha-Lipoic Acid (ideally on an empty stomach) is the standard clinical dose for reversing diabetic nerve conduction delays.
4.The B12 Bypass…
Switching your B12 to a sublingual (under the tongue) format to ensure it gets past the Metformin "wall" in your gut.
Hope this help.....
-

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@valyruss ...I also use a clean toilet brush ( from Walmart or dollar store) to tap my feet and hands multiple times a day...it works wonders..if burning is unbearable i deep my feet in icy water for a few minutes...

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Profile picture for susan1542 @susan1542

Ralph, I read your story and am now having Sanexas treatments. I started noticing an improvement after treatment 6. Ive now had 10 treatments and am blown away. I still have a ways to go but Wow my feet feel So much better already. I’m liking walking just for the sake of walking. I previously spent a lot of money on red light therapy in addition to what was a fancy tens unit with No results. I went into this treatment with no expectations but felt I had nothing to lose. I’m just amazed at the relief already. Thank you so much for sharing your story, Ralph!

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@susan1542 Which Sanexas machine are you being treated with?

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Profile picture for duquer @duquer

That is a scam!, I have had over many many treatments with Sanexas without injections. I did not need them. They just want to use injections to increase their billing. If they refuse to give you a Sanexas treatment without an intact sense, you need to report them

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@duquer Ralph, how many times a week did you have your Sanexas treatment?

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