@okiebon , i started treatment March 17 with just Darzalex and that afternoon I was diagnosed as active MM and they switched me to DVRd, weekly. My first cycle, i got a rash on my face and under my eyes from the Darzalex . I took 50 mg prednisone and within 24-36 hours it was gone. I am 7 weeks in this Tuesday and each week it was a little less inflamed. The Dexamethasone gives me 1-2 restless nights after treatment day, but once it wears off, I feel better.

I started Lenalidomide on March 24 and had a little rash on my face so they held it for 5 days and them i resumed my daily dose of 25 mg. After 14 days, I developed a red raised bumps rash all over my abdomen and under my breasts. It did not itch or burn. My Dr. Is holding it until my appointment with Autologous Stem Cell Transplant on May 1 to determine if we proceed with a plan for the rash or possibly reduce the dose.

I have 3 more cycles before the anticipated transplant . I will keep you posted. This is a journey not a race and the goal is to get into deep remission and stay there as long as possible. You got this! There is an army of mm warriors supporting you all the way!