Will do. Mine's a little more debilitating in that I can manage to go to work buts that's about it, and only a couple days a week so I work reotely the other days. I can generally just sit behind a desk. If I twist to the left not only do I get the bad back pain, but I get the shocks of nerve pain on top of my foot and occasionally in the toes. Point is, I'm sitting most of the day because I cannot walk long distances. PT and chiro seem to make it worse.
@dougs72 I forgot to mention, I too, get the shocks of nerve pain in my right foot mostly, and now in my right thigh. In fact, I can barely have clothes touch my thigh, it's so painful. But, the surgeon said, I have to deal with it until the nerves reconnect, (as I stated in my other reply a few minutes before this one).
Can you share the name of your surgeon on Long Island?
I have seen neurosurgeons for consults, but I really need a neurosurgeon trained in reconstructive and trauma surgery. Thanks
For those of you getting a SCS... don't fool yourself into thinking that once you get pain relief after the permanent implant you can return to doing everything that you did previously. Sure, you(as I did) can do all those things, but it may come at a price. I went back to doing all kinds of strenuous activities after my implant. Then, two and a half years later, all my pain returned. Out of the blue, just like that. The doc's best guess was that the paddle lead may have had some problem, possibly due to all the extra stretching and bending that I was doing. All I am saying is that please be careful. It's not worth losing that wonderful pain relief for some extra activities.
For those of you getting a SCS... don't fool yourself into thinking that once you get pain relief after the permanent implant you can return to doing everything that you did previously. Sure, you(as I did) can do all those things, but it may come at a price. I went back to doing all kinds of strenuous activities after my implant. Then, two and a half years later, all my pain returned. Out of the blue, just like that. The doc's best guess was that the paddle lead may have had some problem, possibly due to all the extra stretching and bending that I was doing. All I am saying is that please be careful. It's not worth losing that wonderful pain relief for some extra activities.
@heisenberg34 my late husband had a scs put in during the early 2000's. He still played professional soccer and I fought him on it. He got other injuries and his scs in those days isn't like today's. The wires got scar tissue on them and entangled in some nerves. He couldn't have the surgeries he needed bc they couldn't remove the scs....it was the pill mill days of the opioid crisis. It killed him in December 2015 and left me penniless. I have 3 class action lawsuits right now bc of that.....START DOING THE RIGHT THING....I BEG YOU 💔😭
@heisenberg34 my late husband had a scs put in during the early 2000's. He still played professional soccer and I fought him on it. He got other injuries and his scs in those days isn't like today's. The wires got scar tissue on them and entangled in some nerves. He couldn't have the surgeries he needed bc they couldn't remove the scs....it was the pill mill days of the opioid crisis. It killed him in December 2015 and left me penniless. I have 3 class action lawsuits right now bc of that.....START DOING THE RIGHT THING....I BEG YOU 💔😭
@abosier65 That' really sad to hear. Yes, the opioid crisis claimed many lives. I don't know if you saw the series, Dopesick, with Michael Keaton, but it focuses pretty well on that issue. He was really brave to do all that physical stuff with a SCS. I think my downfall was to take up skiing again... the very thing that put me in chronic pain in the first place.
I had a SCS in Sept 24. 6 weeks later I switched it off. My story shoukd be on these threads somewhere, but I had an horrific time with it , and was not so active. At removal 11 months later leads had moved I had a spinal canal bleed, my right/ left leg go numb so obviously I have nerve damage.
8 months post removal i am still predominantly couch bound. My pain is massively worse. I personally believe these devices are dangerous and not worth the risk. Good luck to those who have them, my body rejected mine ultimately.
I have had bone & Joint issues since my 20's. 18 surgeries later 3 disc cervical fusion , a 3 disc lumbar fusion a year later a 360 surgery fusion did not work and a jaw joint replaced. I was seen by Orthopedic surgeon for my Cervical fusion that did not work. He advised me he would not recommend surgery and referred to pain care trial was wonderful but permanent stimulator has been a nightmare. I had been shocked, pain at battery site, sciatica on the side of the battery extremely bad. Heard a loud pop in my neck and stimulator would not cut on. I knew I would have to have surgery to have it removed plus my Mother passed away.All of this happened within the first 2 months and I went back in 1/15/2026 I was told it was not broken got it working and a few days later stopped working again. I called pain care office they said per the previous note the stimulator had at 20 leads not working and they asked me if the rep for the stimulator had advised me of that I told her no she said it was not broken. They lied I am having it taken out and have an attorney. There is no hope now!
I had two implanted and finally had them removed. They worked for a little while with little help for pain but had to keep turning them up and up until they were ineffective. Don’t want th back Ever.
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@dougs72 I forgot to mention, I too, get the shocks of nerve pain in my right foot mostly, and now in my right thigh. In fact, I can barely have clothes touch my thigh, it's so painful. But, the surgeon said, I have to deal with it until the nerves reconnect, (as I stated in my other reply a few minutes before this one).
Can you share the name of your surgeon on Long Island?
I have seen neurosurgeons for consults, but I really need a neurosurgeon trained in reconstructive and trauma surgery. Thanks
For those of you getting a SCS... don't fool yourself into thinking that once you get pain relief after the permanent implant you can return to doing everything that you did previously. Sure, you(as I did) can do all those things, but it may come at a price. I went back to doing all kinds of strenuous activities after my implant. Then, two and a half years later, all my pain returned. Out of the blue, just like that. The doc's best guess was that the paddle lead may have had some problem, possibly due to all the extra stretching and bending that I was doing. All I am saying is that please be careful. It's not worth losing that wonderful pain relief for some extra activities.
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3 ReactionsIf one thinks about how much pain has been relieved by the SCS, as I have experienced, the advice above should be humbly received, i.e. followed.
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1 Reaction@heisenberg34 my late husband had a scs put in during the early 2000's. He still played professional soccer and I fought him on it. He got other injuries and his scs in those days isn't like today's. The wires got scar tissue on them and entangled in some nerves. He couldn't have the surgeries he needed bc they couldn't remove the scs....it was the pill mill days of the opioid crisis. It killed him in December 2015 and left me penniless. I have 3 class action lawsuits right now bc of that.....START DOING THE RIGHT THING....I BEG YOU 💔😭
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Like -
Helpful -
Hug
1 Reaction@abosier65 That' really sad to hear. Yes, the opioid crisis claimed many lives. I don't know if you saw the series, Dopesick, with Michael Keaton, but it focuses pretty well on that issue. He was really brave to do all that physical stuff with a SCS. I think my downfall was to take up skiing again... the very thing that put me in chronic pain in the first place.
-
Like -
Helpful -
Hug
1 ReactionI had a SCS in Sept 24. 6 weeks later I switched it off. My story shoukd be on these threads somewhere, but I had an horrific time with it , and was not so active. At removal 11 months later leads had moved I had a spinal canal bleed, my right/ left leg go numb so obviously I have nerve damage.
8 months post removal i am still predominantly couch bound. My pain is massively worse. I personally believe these devices are dangerous and not worth the risk. Good luck to those who have them, my body rejected mine ultimately.
I have had bone & Joint issues since my 20's. 18 surgeries later 3 disc cervical fusion , a 3 disc lumbar fusion a year later a 360 surgery fusion did not work and a jaw joint replaced. I was seen by Orthopedic surgeon for my Cervical fusion that did not work. He advised me he would not recommend surgery and referred to pain care trial was wonderful but permanent stimulator has been a nightmare. I had been shocked, pain at battery site, sciatica on the side of the battery extremely bad. Heard a loud pop in my neck and stimulator would not cut on. I knew I would have to have surgery to have it removed plus my Mother passed away.All of this happened within the first 2 months and I went back in 1/15/2026 I was told it was not broken got it working and a few days later stopped working again. I called pain care office they said per the previous note the stimulator had at 20 leads not working and they asked me if the rep for the stimulator had advised me of that I told her no she said it was not broken. They lied I am having it taken out and have an attorney. There is no hope now!
I had two implanted and finally had them removed. They worked for a little while with little help for pain but had to keep turning them up and up until they were ineffective. Don’t want th back Ever.