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Hypertrophic Cardiomyopathy (HCM) | Last Active: Apr 28 4:20pm | Replies (23)

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@karukgirl hi karukgirl, I'm in a dilemma. I just changed my Medicare Advantage HMO plan in Jan before this diagnosis. I just completed breast cancer treatments last year (like I have nothing else to do) so I had to change my insurance because on 2026 many insurance companies changed their in-network cancer treatment coverage. The NCI designated Optum Center of Excellence in my area wasn't in network for 2026 so I changed the insurance company and the level PPO/HMO so I can still have treatment if I needed it in 2026, financially, not thinking about my heart issues because I never had a diagnosis especially a severe disease. My old cardiologist only said (in addition HTN, blood thinners, Familial Hypercholesterolemia and mitral regurgitation). One day ... Could be a few years or ten years you probably would need a mitral valve replacement.... Otherwise you're fine, everything is the same as last year and the year before.

So obviously I'm like a hawk watching my tests and hoping my cancer doesn't return BUT I have that assurance that I have a in-network center of excellence for cancer treatment within 30 min from my home and family.

Now my current insurance says any centers of excellence for surgery and/or treatment is out-of-network so I'm stuck!

Just trying to keep my positive attitude.

Thanx for sharing !

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Replies to "@karukgirl hi karukgirl, I'm in a dilemma. I just changed my Medicare Advantage HMO plan in..."

@mrsbubbles My fellow mentor in HCM, Debra @karukgirl welcomed you to the big-hearted blog and I do too. She suggested contacting 4HCM.org and I strongly further suggest that you schedule an intake interview. Their knowledge and resources will help you along your journey. This is what they do! I was fortunate that after my family doctor heard a murmur that did not go away, I was referred to a cardiologist who trained at a place that is now a COE, and I was diagnosed quickly after an echo and stress tests. Insurance is ONE BIG HEADACHE! My former employer has a not-for-profit Medicare Advantage Plan for its retirees. Mayo accepts Advantage Plans from employers. I was quite surprised that I was charged in-network copay for the hospital bill at Mayo - it was because no in-network places offer that surgery. I am sorry that you are dealing with so many serious issues ((HUGS)); always remember that this blog is frequented by people who understand and have suggestions. Learn all you can about HCM so that you can team with your doctors in planning your next steps. Here is a link for you to read that may generate questions to ask: https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198 Do let us know if you scheduled an intake interview with the HCM organization and how it went!