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Has anyone had the pouch removed because of complications?
I have gotten sick recently after being exposed to heavy metal at work and now my w pouch and small intestine hurt all the time and the antibiotics haven't worked I just got the scan done where they shot contrast in your ouch and arm at the same time and I'm waiting for the doctor to call I'm scared they won't be able to fix it and I'll have to get a pouch or not be alive and I hated having the temporary one and the thought of having it back makes me cry I'm not sure how to accept this I'm afraid I can't do it
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Hi Jonny;
I’m responding to the sadness, fear and suffering in your note. I have no profound thoughts for you, but do have some wishes and ideas. Can you visit a place that calms you? Either virtually or really? Or talk truthfully to a good friend or family? You know who they are—not the platitude givers, and they may be uncomfortable to be around, but their truth allows yours.
Know that others have traveled your path, and there are also good medications to help. I took Buspar when I was first diagnosed, for anxiety and found it was helpful. Also, I’m a nurse, and one of my friends was finishing chemo for breast cancer as I was beginning the workup for my bladder cancer. She was immensely helpful.
Theres support right here on this group as well. Take care, keep reaching out. It’s hard times right now. I’m sorry I can’t help more.
Karen