SIBO…did it ever go away?

@ttheo I believe it does and my wife takes it as well.

So @jenatsky, sounds like you take digestive gold regularly and fodzyme on certain foods. Are they the same thing? Can fodzyme be taken on a regular basis?

I had a subtotal colectomy in 2007 after I was diagnosed with a genetic disease, FAP - people with FAP have a 100% chance of developing colon cancer. I was diagnosed with SIBO about 10 years ago. I have tried virtually everything from diet to antibiotics to alternative therapy: while I get temporary relief from each, nothing is effective for long. I can manage symptoms through diet - high-protein, low-carb, lactose-free dairy, no gluten and no added sugars. I also have malabsorption issues so have monthly B-12 injections. I also eat every four hours (no snacks!) and never eat after 8:00 PM. “Manage” is the operative word. I am never symptom free and will have a SIBO flare every couple weeks. I had some success with the Paleo diet but none with FODMAPS and have figured out what mostly works for me. (There’s so much I can’t eat that it’s easier to tell friends and family what I CAN eat when I’m invited for a meal.) And sad to say, but my biggest thrill recently was learning I tolerate lactose free dairy which is a great source of protein and now eat Fage LF yogurt and Good Culture LF cottage cheese regularly. Frankly, having SIBO sucks. I have a good friend who also has chronic SIBO and he and I swap info frequently but I’ve learned what may work for me doesn’t always work for him and vice versa. It’s a lot of trial and error unfortunately but I am extremely lucky I was diagnosed with FAP before developing colon cancer and also very lucky to have an amazingly supportive doctor at Mayo Jacksonville who specializes in FAP. And being part of this group helps too !

most if that sounds very familiar. It is fortunate you are able to consume lactose free items. Personally no snd have not found any (stress any - spent countless $$ attempting) type of protein addition that my system will tolerate. For myself, it seems SIBO is simply the outcome of a digestive system that just does not work.
Literally wasting away from malnutrition and all the others issues I carry suck beyond descriptive words and there is no end to the experience other than the inevitable for each of us.

@cheyne sounds like I might be experiencing the same thing. I woke up one morning with gas trapped in my stomach so bad felt like I was going to explode from there I started regurgitating everything I tried to eat even water and my stomach won't tolerate pretty much any kind of food. All I'm able to eat is bananas eggs and toast and this has been going on for almost a year. My stomach bubbles with explosive gas all day long. I just started the antibiotics about 5 days ago but haven't had any relief yet how long did it take before you felt netter

@needhelp210
Hi,
It took a few weeks of slow improvement, then I had to watch what I ate as I suffered mild relapses for the next few months. Eventually it came right but I still am cautious of what I eat or drink.
Good luck.

Does taking that medication for IBS oh my gosh I can’t even remember the name of it. It’s very expensive and I took it for two weeks for IBS. I didn’t feel a relief until maybe two weeks after or so and now I only get occasional IBS so it helped me a lot. It does not affect the entire body just your gut. It was very helpful but sometimes you have to do two courses my sister who is a physician said when I don’t eat correctly I find this to be happening with my IBS. I know you don’t have the IBS. You have something different which I’m not familiar with. I’m so sorry you have to live with that I had IBS but you know what something interesting interesting? After Covid, a lot of people are presenting with G.I. problems like IBS and things like what you’re experiencing I found that fascinating! They’re doing a lot of research into Covid and what it did to our gut health or lack they are of. Good luck to you and all of you

@dt61 I don't think I have commented on your post before. My daughter had recurring SIBO until she was diagnosed and treated for mast cell activation. She has not had SIBO in several years.

I am happy for her and that is interesting, yet another unknown to me condition some people seem to have. I have read of so many various issues on this site and not one of them sounds pleasant.
I hope each find relief as they need. I personally have a compound list of conditions and SIBO is but part of the malfunctioning system.