@janemc I was diagnosed with ET in November 2025. A blood test in July showed that my platelets were 600. Having had a more diagnostic blood test by a heamotologist in 2 months my platelets had risen to over 800 in just 2 months. I was diagnosed to have the JAX2 mutation.
This diagnosis came out of the blue as I have had no major illnesses during my life - Ive had 2 hip replacements during my sixties . I am 87 years old live alone and generally manage very well domestically.
I have been taking 500mg a day for 5 days and 2x 500 on Sat and Sundays plus small aspirin every day.
I'm being monitored. My white cells have been dropping so its worrying .
My side effects are heart burn, frequency and Ive had a UTI recently. Also whether associated or not my weight has increased which Im trying to keep under control.
While I hate having to take Udrea I am aware there is no other option. Best wishes to all fellow sufferers.