ANCA Vasculitis: Side effects of 60 mg of prednisone a day?

Posted by joroy @joroy, Sep 25, 2023

Is anyone else having side affects from taking 60 milligrams of prednisone a day? I’ve been on it for 2 months, seems to be effecting my memory and not acting myself.

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81 & lost hearing in left ear. MD put me on 60 mg Pred for 5 days followed by less & less for a 2 week period to jump start my hearing. On 5th day: I’m on OVERDRIVE!!!! Hearing has not kicked in. Scary being on this drug.

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Oh yes, my experience with long-term high dose prednisone has been a journey! Used first for warm Autoimmune Hemolytic anemia, now for giant cell arteritis. Was tapered too quickly earlier this year with return of symptoms.
Now on very gradual taper (60mg X 2 months!) Just dropped to 55mg yesterday...
I once heard prednisone referred to as "the Devil's tic-tacs" ! Good description isn't it. While it serves its purpose well, the side effects require a lot of patience from us and our families.
I wish you all good things in this crazy life! Thx for offering your story, it helps.

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