@oregongirl, Remember that we are not doctors. We do not know your own personal health history, nor should we. I am happy that @gaybinator has shared her husband's story and experience with you. This will provide you with something to talk about and to think if needed. Most important to remember is that you do not need to make any decision, UNTIL AND IF, your doctor says so.

When I was critically ill, and hospitalized at Mayo Methodist in Rochester, I was facing major decisions, and major issues. The transplant chaplain, Fr Joe, shared something with me that I want to share with you. He told me that Courage happens - when fear is combined with prayer. I believe that courage will also happen for you, when and if you need it. You are on the right path already.

Hugs,
Rosemary

Well having this site is an outlet right now. My kids are in denial. They just do not believe anything is wrong with me. I have RA and I was told many organs can be harmed. I lost a baby when she was 3 months old. If I can get through that, I can do anything. Thank you. You all have so much more than I to deal with. Right now my job is prayer for all of you and me.

Hi @oregongirl i can't say i know what its like to have bad kidneys and maybe need dialysis as i needed a heart transplant but I just wanted to let you know rhat i to understand how you are feeling as both my son and daughter and other family members other then my mom were in denial about me needing a new heart to this day my son is still unable to talk about it and my baby brother and his wife still tell me its all in my head your kids will eventually come around out of denial my advice is stay stronge and have faith and always never give up hope work is good and keeps you busy I can't work my team won't clear me and all I know how to be is a caregiver I just thought you might like to hear from someone who has gone thrue with their lids what you are going thru I know its not easy but I believe and have faith and prayer that you are going to be okay no matter what is your decision is trust yourself and your doctors have hope and faith soory if I'm tepeating myself can never write what I'm thinking exactly right on paper or this phone

@teabird..you said it just right. I went next door to my daughter in law and my son's home and my DIL asked me whats wrong? I don't know what expression I had on my face or what made her ask the question. I answered, just feeling a little weak tonight. FROM WHAT? she said. I understand. I cared for my husband until he passed away. I remember wanting to say.. GET UP, you can't well just lying there. And then he was gone. So, I don't hold it against them. This is how they survive loosing a parent. After-all, when they loose a parent, they realize their own lives are not forever. I really can't say much right now as I will see the doctor and have more information. A heart transplant sounds a lot more frightening than the kidneys. However, both are needed for this body to work. My issues is getting tired so easily. I feel like I could sleep all the time. I grew up in Minnesota, so I am familiar with Mayo. My mother went there and I was always with her. Here it is New Years Eve and at 9:00, I am ready to fall asleep. I will force myself to look into Youtube on my laptop just to stay awake. Thank you Teabird. You are the BEST!

Please call me glinda and your welcome

Do not fight your body, it knows what is best. If it needs sleep there is a reason. Check with your doctor as soon as you can to find out what is happening. May your New Year be enjoyable and fruitful.mlmcg

Rosemary..they have done so many tests on me. No one ever tell me the results. Last visit the cancer Dr said it takes awhile to get tests back. I figure he is gone for Christmas. I am tired of waiting. I am calling his office tomorrow.

@oregongirl, Yes, I know the misery of waiting.
You are among many 'champion waiters' when you post in the transplant community! Definitely not alone in your impatience. I have learned to always ask, at the time of the testing, when and how I will learn the results. I have also learned that each facility and practitioner has a preferred method. And, it is correct that some tests do take longer to process than others. Most important is that if several tests are given, that time might be needed to compare the results for an accurate diagnosis.
I agree that you should make a phone call.
I'm thinking about you. Keep in touch.
Hugs,
Rosemary

I will keep in touch The doctor did say that one test or two had to be sent out and it takes about three weeks. I saw him about two weeks ago. That enough time. I will let you know how it goes. Since I grew up in Minnesota, I would be open to meeting with a doctor at Mayo, Are all the Mayo's the same? I live in Texas, and I know there is one in Arizona.

Hi! I had my transplant 8 years ago but because I had a nephrologist that wasn't that good, I went through the process of being set up for dialysis and only had it for 3 months before my transplant. I had PD and really disliked it. I told my husband if my transplanted kidney ever gave out I would never do dialysis again but this nxstage dialysis sounds very doable. I'm sorry your husband can never have another transplant but this type of dialysis seems to be easier to live with than the other two types currently offered. Thank you for sharing that!