Has anyone lowered their CTX score naturally?

Posted by mcallister1002 @mcallister1002, Feb 15 7:03pm

My CTX score was in the high 600 range. I asked my Endocrinologist how could I get it down into a lower range so I don't fracture. Her response was that the drugs will do that for you. She wants me to go on Evenity. Has anyone had success in getting it lowered naturally?

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for mcchesney @kathleen1314

@mcallister1002
Yes, I have taken strontium for many years. I am now in normal bone density territory and normal bone quality. No side effects, no fractures.
I began strontium because the osteoporosis drug which I was taking at that time had side effects with which I did not feel that I could live plus no good results on that medication. I did my research and began strontium citrate; I was already on BHRT and all the "usual suspects" of bone health.

For the first time I experienced a good result on my dexa results and have continued to have those result increase and improve every time they are checked.

A friend of mine who is on Inspire PhoneyBoney was fracturing when she began strontium citrate; she stopped fracturing and has been on strontium for years. PhoneyBoney says that we won the bone lottery; I believe that she is correct.

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@kathleen1314 How many milligrams of strontium citrate do you take?
I really do not want to go on a bone drug. I know they work for some without side effects. But the stories from women who get side effects are scary.
I have never had a TBS nor a REMS scan done and absolutely should. I know that the DEXA scans can have errors in them (ie., positioning, wrong Region of Interest shown, reading of scan by the doctor etc.).

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Profile picture for mcallister1002 @mcallister1002

@kathleen1314 How many milligrams of strontium citrate do you take?
I really do not want to go on a bone drug. I know they work for some without side effects. But the stories from women who get side effects are scary.
I have never had a TBS nor a REMS scan done and absolutely should. I know that the DEXA scans can have errors in them (ie., positioning, wrong Region of Interest shown, reading of scan by the doctor etc.).

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@mcallister1002
I take the amount that research says works for osteoporosis....680mg usually two pills/tablets nightly.
Well, if you have a dexa where they have the TBS software they will run it automatically.
This search engine will give you the TBS software providers in your area.
https://www.medimaps.ai/find-centers-with-tbs/

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Profile picture for mcchesney @kathleen1314

@dvargo
Please clarify for me the unit of measurement next to the score of CTX 80. (e.g., pg/mL or ng/mL)
Thank you

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@kathleen1314 Cross-Link N-telopeptide, Urine
View trends
Normal range: 5.0 - 65.0 nM BCE/mM Creatinine 85.1. Based on this said to start Reclast.

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Profile picture for mcchesney @kathleen1314

@mcallister1002
I take the amount that research says works for osteoporosis....680mg usually two pills/tablets nightly.
Well, if you have a dexa where they have the TBS software they will run it automatically.
This search engine will give you the TBS software providers in your area.
https://www.medimaps.ai/find-centers-with-tbs/

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@kathleen1314 Thanks Kathleen. I found a facility near me that will do both the Dexa and TBS. I have also found a place not too far away that will do a REMS scan.

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Profile picture for m0h1pp @m0h1pp

I have improved my scores with exercise, Indapamide to prevent urinary excretion of calcium (causation of my osteoporosis) 2,000 iu of D3, and 50 mcg K2, plus adequate dietary intake. Not "natural" but none of the newer meds, either.

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@m0h1pp
hello I'm wondering what your ctx # was if you're willing to share. It is encouraging to hear that exercise improved your ctx.
Thanks in advance!

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Profile picture for mcallister1002 @mcallister1002

@kathleen1314 Thanks Kathleen. I found a facility near me that will do both the Dexa and TBS. I have also found a place not too far away that will do a REMS scan.

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@mcallister1002 curious if anyone on this site knows - I am paying out of pocket for a DEXA; after one year of Reclast I want to know my numbers and Medicare pays every 2 years. Endo gave me a referral to the same center I have had 2 previous DEXAS at (same machine); they do not have TBS. There are some in the area that do; but not what doc referred to and not in his medical group. All centers need a referral whether private pay or not. How to get one if your doctor isn't part of the imaging group you want to go to?

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Profile picture for jozer @jozer

@mcallister1002 curious if anyone on this site knows - I am paying out of pocket for a DEXA; after one year of Reclast I want to know my numbers and Medicare pays every 2 years. Endo gave me a referral to the same center I have had 2 previous DEXAS at (same machine); they do not have TBS. There are some in the area that do; but not what doc referred to and not in his medical group. All centers need a referral whether private pay or not. How to get one if your doctor isn't part of the imaging group you want to go to?

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@jozer Might ask your Endo for another referral to a center that does both DEXA and TBS. Explain why you want the TBS, and give him/her the names of the ones in the area that do both. It may not be common practice for a doctor to refer out of network but if you explain why you want it, he/she may do it.

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