1. < Brain Tumor
Profile picture for jstow07

Share Your Brain Tumor type & Years since Diagnosis

Posted by jstow07 @jstow07, Aug 8, 2018

Hey everyone I was diagnosed almost 7 years ago with a medulloblastoma in my right cerebellum. Completely removed followed by proton radiation. No reoccurrence since. Just curious what everyone else has and how many years and treatment

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Profile picture for cabinlady
cabinlady | @cabinlady | 1 day ago
In reply to @colleenyoung "@cabinlady, that's a lot of cancers. Your husband sounds like a real warrior. What helps him..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

@cabinlady, that's a lot of cancers. Your husband sounds like a real warrior. What helps him get through these diagnoses and challenging treatments emotionally? How are YOU doing in your important role as caregiver and supporter?

Jump to this post

@colleenyoung

Hi Colleen, my husband has been very fortunate to have his kidney cancers stay stable. When i found out about his stage 4 Glioblastoma tumors I could hardly breathe. One of the things I think that helps my husband is that he has No idea his prognosis. I told all his doctors they are Not to tell him. I don’t want him to just focus on that. He just finished 3 weeks of radiation & 155 mg Temozolomide. In 1 month he has his CT & MRI for his kidney cancers & 2 months for MRI of his brain tumor. We have walked everyday, all winter long & now into spring. I try to keep his spirits high. We will celebrate our 50 anniversary this June. He has a lot of prayer coming at him. I met a lady that told me her husband lived 4 good years! I will take that, or a little more!!! He will be 73 in June

REPLY
View MoreView Less
Please sign in or register to post a reply.