I was diagnosed with cll ten years ago-stage 0 and that was the norm for 9 years. In the last year I've been hospitalized 3 times for various dire infections but really fine in between. My hematologist started me on IGG infusions almost a year ago and that's helped keep me out of the hospital. But I'm confused by what my doc tells me--that my cll isn't causing all this? Now I'm tired a lot--def. not my norm! Seems like what I'm hearing here indicates it is cll causing this.
Anyway, it's very good to see all these posts and not feel so alone--thank you all!
@embee85, that sounds like a tough year. If the doctor (hematologist?) doesn't think your issues of the past 12 months are not related to CLL, have they been able to determine the cause?
@embee85, that sounds like a tough year. If the doctor (hematologist?) doesn't think your issues of the past 12 months are not related to CLL, have they been able to determine the cause?
@colleenyoung in part there's an issue of antibiotic resistant E.coli that keeps popping up but increasingly, that sounds like it, too is tied to CLL Thanks for your response
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@embee85, that sounds like a tough year. If the doctor (hematologist?) doesn't think your issues of the past 12 months are not related to CLL, have they been able to determine the cause?
@colleenyoung in part there's an issue of antibiotic resistant E.coli that keeps popping up but increasingly, that sounds like it, too is tied to CLL Thanks for your response