@joanmroby Thank you for sharing about azacytadine being a common treatment for MDS. It’s one of several meds which can be used to help patients with myelodyplastic syndromes. Some meds help control or slow the progression. Other meds can be used to assist with symptoms such helping to raise red and white blood cell counts, along with transfusions for blood and platelets, etc. That’s why I’m a bit perplexed with another member being told there are no treatment options. Perhaps it was because treatment wasn’t warranted yet so his doctor didn’t mention it? Not sure. Anyway, thank you so much for your input.

How have you been? Are you still receiving occasional platelet transfusions?