Tarlov Cyst on the spine: Any advice?

I sadly am in your same boat. I have several large sacral Tarlov cysts with the largest one at 3 cm and more up my spine which are not symptomatic yet. The cysts are eroding my tailbone and caused a lot of low back pain. The ones in my sacrum are symptomatic and caused me much pain in my lower back and affect every thing below the waist. I have to meet her out how much I sit stand or walk and I have to have several lay downs during the day. doctors are ignorant on the subject and do not understand Tarlov cyst at all. I was actually diagnosed by my chiropractor who very kindly called me on the weekend and told me it was going to be life-changing. That was six years ago and I am so much worse. I found out I have ehlers-danlos syndrome also. I have talked with Doctor F. in Dallas Texas, the only one who I would trust to operate on these. Do not get the fibrin glue it does not last more than a few months and can make surgery down the road more difficult. I am not a good candidate for surgery so I will live with these the rest of my life probably in misery. Aleve is the only over-the-counter medicine that helps and I have taken it every single day for 6 years. I take Flexeril when I am in a bad flare-up. Ice, heat, Epsom salt baths, Tens, salonpas, biofreeze, are some things that help. Exercise makes mine totally worse and sends me into a flare up. Swimming pool is great therapy but don't overdo it. on Facebook there is a Tarlov cyst support group I would recommend joining that and you can search at the top for any types of medications that people are using. I just keep praying that someday in the future they will have a way to operate better on these things! Wish I had better news for you!