Took me 82 days start to finish, yesterday got the first Amvuttra injection.

My first indication was 1/23 at the Mayo Clinic Rochester. The afternoon before i was scheduled to leave i was playing with Chat GPT for the first time and put my info and history into the program including results of an echo. I was being seen in cardio for rythem issues... The AI raised concern as i had put bilateral carpel tunnel and bicep rupture history. Contacted provider at 330pm on Friday, got me in for labs and showed 2.5 poits high kappa lambda and m spike high by .54. Flew home .

Back to the clinic 3/17 , all necessary appointments arranged, diagnosis of TTR 3/18, a little longer for genetic testing to determine wt rather than hereditary. Then classified as Stage 1 ATTR CM.

I chose treatment with Amvuttra , and because Amvuttra will be administered at home, away from Mayo it caused an additional delay . Had to get my PCP on board as well at the hospital and infusion center. Amvuttra has to be given in a clinical setting.

Amvuttra is covered under Medicare part B, not D. Doesn't fall into typical drug rules for Medicare patients. It is a more patient friendly environment. In the case of Amvuttra it is more financially and procedurally beneficial to be on Medicare than private insurance. You really need specialty pharmacy and hospitals that are familiar with the process. We'll see how it goes from here.