Share Your Brain Tumor type & Years since Diagnosis

We found out my husband (59) had a brain tumor on February 1 of this year. Initially docs thought it was slow growing and nothing to be concerned about but wanted another MRI done, this time with contrast. We had to wait until the 23rd and in that time the tumor had doubled. Initial visit with Neurosurgeon on February 26, Pre-op on March 2 with surgery on March 3. It took almost 4 weeks before we got the official diagnosis of Glioblastoma Wild Type, unmethylated. He started radiation and Temozolomide on March 23. It has been so overwhelming, and he is so sad all of the time. He is handling his treatments well, no side effects so far, still does his strength training, core exercises and walks/jogs for 40 minutes most days. Has trouble eating as much as he should though. Physically he feels great, emotionally he is a wreck.

Jeff was diagnosed with Grade 4 glioblastoma (GBM), IDH-wildtype and MGMT-unmethylated, in December 2025. The tumor was identified after he suffered a grand mal seizure on December 21, 2025. Prior to this, he was in excellent health and maintained a very active lifestyle. Following the seizure, he was hospitalized for 24 days, including 11 days in the ICU.

His tumor is considered inoperable. Following his diagnosis, he experienced significant left-side weakness that affected his strength, mobility, and balance. His short-term memory, cognitive function, and vision were also impacted. Through 7 weeks of physical and occupational therapy, along with 5 weeks of cognitive therapy, he has made meaningful progress. He is stronger now, his movement has improved, and his memory and cognitive abilities continue to get better.

He completed 30 sessions of radiation and chemotherapy (TMZ) on April 8, 2026. We will be traveling to the Mayo Clinic to explore additional treatment options, and he is expected to begin Optune Gio with TMZ in May. I am also in communication with two clinical trials and praying he will qualify.

@judyandchloe, how is your brother and family doing? What is the treatment plan?

I had brain surgery in 1992 to remove a tumor in my right temporal lobe & a growth in the center of my brain that my neurologist thought was promoting grand mal seizures.
Within 10 days of the surgery, I developed severe depression. In fact, within the 2 months of recovery, I had 3 suicide attempts. Having been placed in the psych ward of the hospital, they tried numerous medications to help alleviate the depression. It wasn't until the third week there that they tried me on Lithium, with great results. The depression miraculously lifted. I was later diagnosed with bipolar illness. Was released 1 week later on condition that I see a psychiatrist on a weekly basis. That helped immensely. I learned to accept & forgive myself for my downfalls. I love my life now. Yet, because I was on such a high dose of Lithium, my shrink thought it best to replace it with a less dangerous drug... Namely valproic acid. It is my happy pill to this very day.

Mengioma removed 4 years ago today.
Some minor deficits include; hearing loss, peripheral vision loss, balance issues, muscle loss & MAJOR personality change.

@micheljmarion1983

So sorry you suffered for so long in this dreadful way

@catv7 hello! I had a craniopharyngioma removed 9/2025 and am having vision issues, not driving at night, light sensitivity and feel loss in peripheral vision even though I have passed the field test when last taken months ago. Other things dealing with since surgery. So sorry for your suffering.

Worst is personality change