@twitt1949 @katgob In a similar situation with numbers being 'too good' to move forward for just over a year now with all of last year those numbers kept declining though still too good.
In late October last year I began Traditional Chinese Medicine (Acupuncture, Massage, Meditation, Herbs). This has at least stabilized most results with some minor improvements in others. Best of all is my legs, which felt like the femurs were made of ice and painful, are warm again!
Between getting the spleen to help make healthier blood and the herbs for resiliency I am back training for another race in December...while still lacking the endurance I had prior - as my oncologist calls it my bone marrow is lazy - to compete in another ultra-marathon, at least now I have a goal to aim for as a fund-raiser for Blood Cancer United, specified for MDS research/advocacy.
Gonna keep moving forward as much as possible until I cannot so we can gain better knowledge and research.

G’mornin’ @twitt1949 It can be really helpful to have someone with you at your appointments, whether at home with Teleconference in person at the office.

I know from personal experience that appointments are short, there is much to discuss and conversations jump from one thing to the next. So have your wife sit in and take some quick notes as your doctor is talking. In fact, for my Mayo appointments, even though I am entirely lucid (haha well, maybe not totally) it’s a requirement to have my ‘caregiver’ accompany me to appointments. That way there is an extra set of ears.

Doctors appreciate questions. But it’s important to actually have your questions and concerns written down on a piece of paper in front of you or notes on the phone. That way it’s easier to keep on task with brevity so that time isn’t lost.

If you’re not understanding something at the time your doctor is explaining, just say so! It’s ok to stop the flow. Just wave your hand a moment and say something like, “Just a sec, I have a quesiton about that, or what does that actually mean?” That type of thing. This is your health. You want answers.

As we’ve talked about before, MDS is a condition where the bone marrow isn’t able to keep up production of one or more types of blood cells. I may have posted articles for you before. But here are two that give pretty straightforward information on MDS. I seldom cite WEB MD but this is a comprehensive article that might be helpful. Then the other is from Cleveland Clinic.
Webmd:
https://www.webmd.com/cancer/lymphoma/myelodysplastic-syndrome-causes-symptoms-treatment
Clevelandclinic:
https://my.clevelandclinic.org/health/diseases/6192-myelodysplastic-syndrome-myelodysplasia
You asked about the results of your bloodwork. Keeping in mind that members in Connect aren’t able to interpret test results, diagnose or offer treatments. But we can use our personal experiences to offer assistance. So, with that being said, there have been some changes in your current numbers compared with previous results.
As you can see on your results, in the left hand column are the ‘normal’ levels for each type of test.
WBC (white blood counts) are lower which can leave you more prone to infections. That can mean airborne respiratory diseases but also fungal infections from air and soil, infections from cuts, etc.. So be mindful to avoid situations of exposure and maybe mask up if you’re out raking, working with soil, spending time indoors with people, etc.
RBC (red blood count) and subsequently the hemoglobin numbers are lower. Reb blood cells carry oxygen throughout our body. The normal hemoglobin levels for men are 13.5 to 17.5.
Your level is now 11.6. When levels of hemoglobin (Red blood cells) are lower than the norm, symptoms such as getting winded, legs feeling heavy, fatigue becomes more noticeable. At some point your doctor may suggest a medication which can help the body produce more red blood cells. If the hemoglobin level drops to a certain level then doctors generally order a blood transfusion to bring the number back up.
Similarly with platelets. As we talked about before, low platelets can have symptoms such as bleeding gums, unexplained bleeding, and such. If the level gets too low, the doctor can order a platelet transfusion.
The RDW on your test, is red cell distribution width. It’s a blood test that looks at variations in red blood cell size. A high RDW can be a sign of conditions like anemia, which is reflected also in your lower RBC and lower hemoglobin.

So you have a few things to talk about with your doctors.