Neuropathy with back pain exercise

Posted by steveinmontana @steveinmontana, Apr 4 3:53pm

I am 73 and haven't been diagnosed with any kind of PN yet, although, through extensive research, determined that I have some form of PN in my feet. I have a conductive nerve test in June (first available). Experiencing numbness in toes and balls of both feet moving to ankles, that causes balance issues. No falls as of yet. To exacerbate this, I suffer from spinal stenosis at my L4/5 and S1. I've had a radio frequency ablation that failed and just had an epidural.

Enough about my symptoms.

I've only been able to bear standing no longer than 10 or 15 minutes without having to sit to relieve the back pain, so exercise has been out of the question for me. About a year and a half ago I bought a treadmill that just sits there because I just can't use it for much more than 5 minutes due to my back pain. My granddaughters get more out of it when they come to visit!

So, finally my question.

What is a good indoors exercise machine I can use to get back into some halfway decent shape? Get the legs strengthened and burn some calories. I used to have a recumbant, but found I just didn't care for it and sold it. I'm thinking an old fashioned stationary bike would be best. Good for legs and burning calories and easy on the back. Any other ideas that I can't think of would be greatly appreciated!

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for jeraldrondo430 @jeraldrondo430

@brennankb55 make sure you have the best surgeon for your surgery. I had the same reaction from my internist about paralysis and I’ve been thru two surgeries for spinal stenosis and they both have been successfully done. One in Sarasota and the other at University of Washington Teaching Hospital. Go for it but get the best.

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@jeraldrondo430 ~ That's great to hear someone had a successful surgery ~ two even! Wow! That's very encouraging. The neuro I've been referred to has a great reputation here in Reno, and his patients seem to adore him. My primary is the one sounding the alarm about paralysis, and he is totally happy with the neuro I'm referred to. Of course, if he's that good and that well-respected, I hope he has time to fit me in!! Putting it God's hands.

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Profile picture for bjk3 @bjk3

@brennankb55 Things seem to be moving mighty fast (your condition, not the medical interventions). I applaud you and your husband for looking into/investing in the additional walking and other aids that help you to safely navigate your living space. These constant accommodations of what we need according to how our bodies change are exactly what I was talking about in not knowing what to expect. I am now the proud owner and user of one walker and one rollator each in the car, one rollator for the garage and yard, and two in the house (mine is ranch style) - one that has a seat and the other, not. How did all this come about???
I've never heard of cauda equine compression - I will look that up. For sure, have that top of the line surgeon do your procedure, not "just anyone". Mine was decompression and fusion of L2 - Sacrum - a 7 hour operation because there were other issues that couldn't be detected before the procedure: the large number of bone spurs and resultant scraping was part of it. The only resultant pain was the healing of the sciatic nerve on my left side. It took weeks and weeks. I was so afraid the damage (and pain) were going to be permanent, but I was assured by the surgeon that they were not, and he was right. He said it would take some time, and he was right about that, too. But sure enough, no sciatic pain!
I think one of the most perplexing & disappointing results of all this (mobility issues due to breaking my hip about 10 months after the back surgery, P.N., inability to plan how pain meds may affect me based on exhaustion, combination with other meds, arthritis sometime as a response to changing weather, etc.) is that I'm just not dependable. Responsible, yes, but not able to be relied upon to be present at group events where there may be expectations as to participation. It bothers me to think it may look like I show up only when I want to.
Well, I don't want this to be a rant without end! I am plenty grateful for the way the Lord has provided through my whole life, given me an unbelievably wonderful family, and continues to take care of things, even as this body declines. Life is good. I believe I'm not the first to make that observation!!
Keep us posted. I am praying for you ~
Barb

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@bjk3 ~ I can relate! I've been on Amazon, hunting for other ADA-type things to help do what I've always taken for granted that I'd be able to do long into my 80s-90s. I'm just 71 - how can this happen now?! Well, the good Lord knows and maybe it's better than I don't know what my future looks like. I feel the same as you though, about not being involved in things simply because I can't count on being able to stand, walk, lift and carry things. I can barely stand to brush my teeth at present, so now there's a little stool there for me to sit down. We just have to laugh as much as we can. My husband and church family are all taking care of me and keeping us both in their prayers. I'll keep you posted and please do the same! 🙏❤️

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Profile picture for steveinmontana @steveinmontana

@loriesco I don't mean to be rude here, but I believe that this site is for sharing experiences, not diagnosing or explaining physiology. By sharing experiences, we can learn from one another and then take that to our doctors for further discussion and research. My kind suggestion would be to share an experience that you've had and allow the person to educate themselves. For instance, I learned that a neurosurgeon did back surgeries from a comment that you and another mentioned, and that my doctors never advised me of! From that little tidbit, I hope to speak to one in the coming weeks to see if I might be a candidate for a minimally invasive laminectomy procedure. I am so grateful for that shared experience!

I hope you have a great day!

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@steveinmontana Tomorrow I’m having a minimally invasive endoscopic (not open) 2-level laminectomy. I have a great neurosurgeon from Johns Hopkins who was rated a top doc in MD. He says there is only one nickel hole incision & it’s an out patient surgery. I’ll let everyone know how the surgery & recovery goes. Wish me luck!

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Profile picture for brennankb55 @brennankb55

@jeraldrondo430 ~ That's great to hear someone had a successful surgery ~ two even! Wow! That's very encouraging. The neuro I've been referred to has a great reputation here in Reno, and his patients seem to adore him. My primary is the one sounding the alarm about paralysis, and he is totally happy with the neuro I'm referred to. Of course, if he's that good and that well-respected, I hope he has time to fit me in!! Putting it God's hands.

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@brennankb55
Let God take the reins for you and all will be granted.

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Profile picture for sue4 @sue4

@steveinmontana Tomorrow I’m having a minimally invasive endoscopic (not open) 2-level laminectomy. I have a great neurosurgeon from Johns Hopkins who was rated a top doc in MD. He says there is only one nickel hole incision & it’s an out patient surgery. I’ll let everyone know how the surgery & recovery goes. Wish me luck!

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@sue4 Hoping all goes well and looking forward to hearing about the procedure!

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Profile picture for brennankb55 @brennankb55

@loriesco ~ This isn't a competition or platform over who's right or wrong. I've learned a lot from what people have shared, but I don't tell anyone what they should or shouldn't do, nor do I presume to "correct" anyone about their comments. Doing so would be inappropriate and insensitive, especially when stepping into someone else's conversation. We're all dealing with enough agony here without piling on. Likewise, we all have a lot of experience, information and education to draw on in dealing with various ailments, as long as we share that knowledge in a sympathetic and respectful way. I trust we can all keep that in mind going forward.

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@brennankb55 I apologize. But "should" is your idea of what to do and not do. I might think its inappropriate for you to keep wanting to correct me. First it was the diagnosis and now it is correcting what I saw as "wrong" information. If this group devolves into disinformation than there is no value to be had here. I said what I had to say. You may not like it, so move on. I'm sure you don't want to edit it. And neither do I. I can only offer an apology if you feel offended. It was not my intention. Plenty of times I have been wrong and I will own up and edit my comments. I don't feel there was anything inaccurate. But I actually haven't gone back to look again as I am working. Good luck!

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Is this the thread where someone recently posted about maybe tring to tie spinal stenosis to a fall maybe 30 years ago in his past? I recall as a youngster over 60 years ago falling from a tree and landing flat on my back. We would climb up tall birch trees and let them bend and gently lower us to the ground. In my case the top broke off of one and sent me for a fall. No medical repercussions from it that I recall. Generally spinal stenosis afflicts those with osteoarthritis which I have.

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sounds like you should see an orthopedic surgeon. A simple xray will tell you both all you need to know. I went through that. I eventually had lumbar fusion surgery and got my life back. Find a REALLY GREAT SURGEON and see what he has to day.

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Profile picture for doctordeuce @doctordeuce

@brennankb55 I have the same spine nerve pain that I guess you do as well, I just purchased a unit for my spine and the nerve being pinched and bought a device called "SMOOTHSPINE" I haven't used it yet, but will and you might check them out on the internet!!!!

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@doctordeuce
Just curious if you have had any positive results from using SmoothSpine? I have unilateral neuropathy (no pain, just numb on left side of body) due to (presumably) spinal stenosis and nerve compression. Looking at this device but want to understand from someone who has used it if it truly is helpful.

Thank you for any insight you can provide.

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Profile picture for nanmora @nanmora

@doctordeuce
Just curious if you have had any positive results from using SmoothSpine? I have unilateral neuropathy (no pain, just numb on left side of body) due to (presumably) spinal stenosis and nerve compression. Looking at this device but want to understand from someone who has used it if it truly is helpful.

Thank you for any insight you can provide.

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@nanmora I haven't used it a lot as yet, but it is very great feeling the rollers and outer things you feel! It has a red light on the one I got which is the higher priced and has more bells and whistles. The only thing I'm not happy about is it is hard surface and you must get it in the correct placement on your back or you get a sore lower back!!!! I just ordered their red light belt to use for 15 minutes and their electric small stick on units for my spine. C4 & C5 Lombards are coming together as the cushion that separates them losses fluid as we get older and that is why they come together!!! And guess what the nerves go between the Lombards and that is what causes the lower extremities become numb!!!! My physical Therapist just gave me what I think is the best information of all the Neuropathy guys I have seen. The thing we need to do is work on our insides, not creams and all that stuff the SNAKE OIL SALESMANS want to sell you. Here is the product has B1 in it BENFOTAVNINE-Fat Soluble. The other 0ne is THIAMINE- Water Soluble if you take this one you will drink 6 glasses of water a day and you will urinate along with other fluids, so that doesn't stay in your body long enough to help you!!!!!! The Fat Soluble will stay in your body all day and that is the best choice!!!! He recommended the best guy to watch for all Neuropathy is on YOUTUBE- EO NUTNTION, His writing is hard to make out the letters, so hope I'm close to the correct spelling!!!!

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