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Rashes from RMC-6236 or similar targeted drugs

Posted by strongone21 @strongone21, Apr 3 12:16pm

Skin rash has been a tough thing to deal with as a side effect from the trial drug. Anyone has tips on what has worked for you from experience?

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Colleen Young, Connect Director | @colleenyoung | Apr 16 7:24pm

Skin rashes can occur with some targeted therapies. You might appreciate the helpful tips shared in this discussion about a different targeted therapy.

- Sores on torso and arms after multi-year use of Xalkori (crizotinib)? https://connect.mayoclinic.org/discussion/sores-on-upper-torso-and-arms-after-multi-year-use-of-xalkori/

@strongone21, I assume since you are taking this therapy as part of a clinical trial, your side effects are reported and closely monitored. Did they adjust the treatment protocol? Did they offer any solution to help with the skin rash? How are you doing now?

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strongone21 | @strongone21 | Apr 16 10:07pm
In reply to @colleenyoung "Skin rashes can occur with some targeted therapies. You might appreciate the helpful tips shared in..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

Skin rashes can occur with some targeted therapies. You might appreciate the helpful tips shared in this discussion about a different targeted therapy.

- Sores on torso and arms after multi-year use of Xalkori (crizotinib)? https://connect.mayoclinic.org/discussion/sores-on-upper-torso-and-arms-after-multi-year-use-of-xalkori/

@strongone21, I assume since you are taking this therapy as part of a clinical trial, your side effects are reported and closely monitored. Did they adjust the treatment protocol? Did they offer any solution to help with the skin rash? How are you doing now?

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@colleenyoung thank you for sharing the discussion thread. yes side effects are monitored every week and they added an ointment that is helping reduce the rash, along with the medication. Things are getting better slowly!

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gamaryanne | @gamaryanne | Apr 17 7:51am

The skin issues are rough. Mine were particularly bad at fingernail beds, toenail beds and of course, my face.
In addition to the ointments and creams the trial allowed, I soaked my nails in a combo of vinegar and water. Lots of mildly warm compresses on my face, then reapplication of cream.

I was also given a mild antibiotic that was allowed. I lost a toenail but now, a year later, it’s actually grown back normal!

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strongone21 | @strongone21 | Apr 17 10:47am
In reply to @gamaryanne "The skin issues are rough. Mine were particularly bad at fingernail beds, toenail beds and of..." + (show)
Profile picture for gamaryanne @gamaryanne

The skin issues are rough. Mine were particularly bad at fingernail beds, toenail beds and of course, my face.
In addition to the ointments and creams the trial allowed, I soaked my nails in a combo of vinegar and water. Lots of mildly warm compresses on my face, then reapplication of cream.

I was also given a mild antibiotic that was allowed. I lost a toenail but now, a year later, it’s actually grown back normal!

Jump to this post

@gamaryanne So sorry to hear what you have gone through. Face rash was the hardest.

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