Does Pluvicto work? What's the prognosis?

Posted by cal77 @cal77, Mar 6 10:03am

Hi,

Docetaxel doesn't seem to be working..My husband's PSA is up now to 500!! He's had 2 treatments of Docetaxel so far, but they are only giving him 1/3 dose, because he had a tumor removed at his spinal cord at T4 in November and is trying to get mobile now.

So, does Pluvicto work? Is it as good as Docetaxel? What is the prognosis with Pluvicto? This is all so scary.

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Profile picture for cal77 @cal77

@deccakid

Thanks...They told us we should have separate dishes, or rather paper plates and separate utensils. My husband can't urinate sitting or standing and so he lies down and it goes into urinals. These have to be washed out and dumped into the toilet. Lots of potential for drops and spills. Then he wears Depends which he changed at least twice a day and these , I was told should be placed into double garbage bags, and then his clothes if they get spilled on by urine or he sweats, then put them in a bag for 7 days, and then wash in the washing machine separately and wash twice... OMG is all l can say. This is unreal.

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@cal77
Howdy Ma'am,
It sounds like they're also advising common sense practices, but keep the faith!! As I've said (and gone through before)...it's better to deal with the effects than not treat at all...I hate to be blunt, but that would be the most difficult scenario, right???
Yep, the whole thing is seemingly unreal, but nothing you can't handle. Be strong!!
Blessings!!!!!

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Profile picture for cal77 @cal77

@deccakid

Thanks...They told us we should have separate dishes, or rather paper plates and separate utensils. My husband can't urinate sitting or standing and so he lies down and it goes into urinals. These have to be washed out and dumped into the toilet. Lots of potential for drops and spills. Then he wears Depends which he changed at least twice a day and these , I was told should be placed into double garbage bags, and then his clothes if they get spilled on by urine or he sweats, then put them in a bag for 7 days, and then wash in the washing machine separately and wash twice... OMG is all l can say. This is unreal.

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@cal77
Oh!!...DO remember these precautions are only for the short term 3-5 day window...(I think)...That should make the process more palatable...
Be strong, Be brave and be blessed!

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Profile picture for Jeff Marchi @jeffmarc

@cal77
There is no standard amount of time. Pluvicto works. Four months would be on the Short side.

The guy that runs the Advance prostate cancer online forum for the reluctant brotherhood had his Pluvicto treatment about four months ago. His treatment was so successful that after three treatments, his PSA dropped a .05 and he did not take any more treatments, holding them off till later. His PSA has stayed close to that since the Treatments. He’s had prostate cancer for 12 years and has had almost every treatment you’ve ever heard of.

The biggest problem is that it is not successful for everybody, about 40% of people don’t get good results. The other 60% vary from 50% reduction in PSA to a major reduction in PSA. You need to see what happens to figure out how well it’s going to work for him. Some people get 18 months out of it.

You’re getting a little overworked about the radiation. I know some people that have been told many fewer requirements for keeping apart. You don’t have to worry about it going through a wall.

A 20 minute ride is not enough time for a significant radiation transfer. You could always rent a bigger car for two days, But I bet the doctors will tell you that’s not a problem.

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@jeffmarc
Sure would like to talk to the guy from Reluctant Brotherhood to find out who his dr. is or where he goes for treatment. Thank you.

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Profile picture for deltadawn78 @deltadawn78

@jeffmarc
Sure would like to talk to the guy from Reluctant Brotherhood to find out who his dr. is or where he goes for treatment. Thank you.

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@deltadawn78
There’s a meeting tomorrow Thursday 4-16 at 5 PM Pacific time. You can speak to Peter, he runs the meeting.

Join: https://zoom.us/j/9512590084

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Profile picture for cal77 @cal77

Hi,They are thinking of trying Pluvicto with my husband. What is the prognosis with this? When I googled it, I read 15 months increased survival! That doesn't sound very good to me..Anyone had Pluvicto? How are you doing?This is all so scary...What about Immunotherapy for Stage 4 Prostate cancer? His PSA is up to 500, although 2 weeks ago it dropped to 490 and didn't increase..so we were thankful for that..Thanks,

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I had my first Pluvicto infusion yesterday. Interesting...
...I live alone, so I don't have to exercise as many precautions as those around others. The day after effects are the obvious...tired, but unlike the tiredness of radiation, chemo or ADT...No effects on appetite. A bit of dry mouth and throat...nothing debilitating...I'll keep you posted as time goes (flies) by.
Blessings to all

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Profile picture for Jeff Marchi @jeffmarc

@deltadawn78
There’s a meeting tomorrow Thursday 4-16 at 5 PM Pacific time. You can speak to Peter, he runs the meeting.

Join: https://zoom.us/j/9512590084

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@jeffmarc

Thank you!

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