Shaking and extremely cold after chemo

Posted by minimia @minimia, Jun 10, 2020

Any insights on what causes shaking and being extremely cold during/after chemotherapy treatment?

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Profile picture for oakwood @oakwood

My husband has stage 4 esophageal cancer and has started 3000 mg Capecitabine each day of radiation. Coming home, he got the shakes so bad, he pulled over to let me drive. I plan on mentioning it tomorrow to the radiologist but I am now concerned about him driving alone. I have heard of people driving themselves to radiation and chemo infusions. So should I be concerned?

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@oakwood Hi and welcome to Mayo Connect. When does he take the capecitabine? Does he take it at home?

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Profile picture for oakwood @oakwood

My husband has stage 4 esophageal cancer and has started 3000 mg Capecitabine each day of radiation. Coming home, he got the shakes so bad, he pulled over to let me drive. I plan on mentioning it tomorrow to the radiologist but I am now concerned about him driving alone. I have heard of people driving themselves to radiation and chemo infusions. So should I be concerned?

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@oakwood, the American Cancer Society has a program of volunteers across the nation offering free rides to cancer-related medical appointments. See more info here:
- American Cancer Society Road To Recovery® program https://www.cancer.org/support-programs-and-services/road-to-recovery.html

My dad was both a volunteer driver and then a cancer patient who used the service. His driver was also a cancer survivor and a welcome companion on the drive.

How is your husband doing? How are YOU doing?

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Profile picture for Colleen Young, Connect Director @colleenyoung

@oakwood, the American Cancer Society has a program of volunteers across the nation offering free rides to cancer-related medical appointments. See more info here:
- American Cancer Society Road To Recovery® program https://www.cancer.org/support-programs-and-services/road-to-recovery.html

My dad was both a volunteer driver and then a cancer patient who used the service. His driver was also a cancer survivor and a welcome companion on the drive.

How is your husband doing? How are YOU doing?

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@colleenyoung Thank you for your reply, but I don't think we need drivers. Maybe when he gets sicker. Do you have anyone for Newark, MO?

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@oakwood Hi and welcome to Mayo Connect. When does he take the capecitabine? Does he take it at home?

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@tomrennie
We finally got on the same time each day for radiation so that helps if figuring out Capecitabine, thyroid med and eating. He takes it in the car, on the way home after eating and again at night after supper.

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Profile picture for oakwood @oakwood

@tomrennie
We finally got on the same time each day for radiation so that helps if figuring out Capecitabine, thyroid med and eating. He takes it in the car, on the way home after eating and again at night after supper.

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@oakwood Timing all of meds can be a challenge. I wasn't good at it. So, once we figured out what worked best for my body, my wife put the meds and the times to take them on a spreadsheet. Over 3.5 years later, it still hangs on the refrigerator. I can't miss it there.

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