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Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Posted by egoodies @egoodies, Aug 14, 2023

Anyone currently battling bile duct cancer? I would love to speak to discuss your experiences. I was just recently diagnosed in June.

Interested in more discussions like this? Go to the Liver Cancer Support Group.

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denvergirl | @denvergirl | Apr 14 7:54pm

@mschwant - I too am sorry to hear of your husband's dx. Have you sought a second opinion about the surgery?
I too have cholangiocarcinoma. Surgery was an option for me and I definitely recommend Mayo Rochester. Dr Starlinger was my surgeon and he and his team were excellent.
Hopefully the radiation and chemo will be successful for him.
@denvergirl

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Mentor
Turkey, Volunteer Mentor | @tomrennie | Apr 28 10:03am
In reply to @mschwant "My 85 year old husband is being treated for cholangiocarcinoma with radiation and chemo. Surgery is..." + (show)
Profile picture for mschwant @mschwant

My 85 year old husband is being treated for cholangiocarcinoma with radiation and chemo. Surgery is not an option we are told. Fatigue big factor. Expecting 15 treatments if he can make it.
Not sure how much time we are buying, but interested in averages.

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@mschwant How is your husband doing?

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djjnurse | @djjnurse | Apr 30 10:47am
In reply to @ginnyk "@demooretucson I think Mayo Rochester is the place to go. I had Dr. Starlinger’s team and..." + (show)
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@demooretucson
I think Mayo Rochester is the place to go. I had Dr. Starlinger’s team and they were also excellent. I bet they will eliminate the mystery.

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@ginnyk I go to Mayo Rochester but besides stenting they wont d anything surgically due to the vascularity. I do have an apt with UW Madison Liver specialist in Aug.
Deb

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