What is your quality of life after a partial maxillectomy?

Posted by coquest23 @coquest23, Dec 21, 2023

Has your quality of life improved or declined after having a partial maxillectomy? If you had to make the choice again, would you do it? What is the hardest thing you've had to live with post-surgery? Making a decision to have or not have this surgery seems like a lose/lose choice. Please share your thoughts and experience.

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coolcakes | @coolcakes | Apr 27, 2025

Thank you so much 😊 we are having regular visits.
Does anyone have experience with there being a positive surgical margin after the surgery, including nodes affected and perinural invasion?
Would be interesting to hear of people’s outcomes and how much time the surgery alone gave them. Or whether all that can still share experiences had both radiation and chemotherapy?
Thanks in advance

pamelaaci | @pamelaaci | Apr 14 6:59pm

In reply to @coolcakes "Thank you so much 😊 we are having regular visits. Does anyone have experience with there..." + (show)

@coolcakes I see I'm a year late (sorry! perhaps it might help someone else) -- husband just had HPV small palate surgery on 3/23/26 and so far positive surgical margin for 2cm T1. They removed all lymph nodes for precaution. No radiation or chemo needed at this point. It was a choice to go with surgery or radiation and from going through this Mayo site we found the surgery an easier option. So far so good and crossing fingers...