Scanxiety overtaking my life

Posted by lhatfield96 @lhatfield96, 5 days ago

Hi all. I hope everyone is well. I need some support and I don't know where to turn as my family does not understand what I am going through and the intense feelings associated with receiving a cancer diagnosis. I am not coping well to be honest. I had surgery to remove a 9mm stage 1A1 adenocarcinoma from my right lung last August. The surgery was deemed a success and curative. I had my first follow up scan in December and that was clear. I have another coming up this Tuesday and I am absolutely wrecked with fear and anxiety that it has "come back" or they will find something in the other lung. I don't know what to do or how to get through this its like I have lost all sense of rationality about this. I keep thinking this is going to kill me. Has anyone dealt with these feelings and increased anxiousness close to scans? How do you cope and keep functioning? I know I need to see a counselor and am working on that but I wanted to come here first. Thank you so much for taking the time to read this and offer any experiences/support-it is greatly appreciated.

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Profile picture for frouke @frouke

@lhatfield96 My first surgery was considered curative, lobectomies are considered the best treatment for early stage cancer. The surgeon did not consider the second cancer to be connected with the first time, I don’t think that they really know all the answers, cancer is a very insidious disease and highly unpredictable, I pray that one day soon they will have a cure and rid the world from this disease, amen 🙏

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@frouke my surgeon opted for a wedge resection. I truly hope this was enough.

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Profile picture for Lisa, Volunteer Mentor @lls8000

@lhatfield96, The way you are feeling is understandable. I have scans every 3-4 months. I TRY to flip the narrative in my head. I tell myself, if there is something of concern, worrying about it is not going to change the outcome. If there is something there, I want to know about it so we can act on it early. Also, knowing what we'll do when I do have progression helps. I have a plan in place with my oncologist, which has changed over time as new information or treatments have come available. I think I'm ok leading up to scans, but once they are over with, I do feel the sense of relief too. It's not an easy situation to manage. It sounds like you are taking next steps to get some additional help, that's important too. Good luck to you tomorrow, take a deep breath, wishing you well.

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@lls8000 oh Lisa this is just too much at times. Having a terrible day today. Questioning whether the wedge was enough to get rid of it why didn’t he take the lobe out etc. I appreciate your words of encouragement so so much.

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Profile picture for lhatfield96 @lhatfield96

@lls8000 oh Lisa this is just too much at times. Having a terrible day today. Questioning whether the wedge was enough to get rid of it why didn’t he take the lobe out etc. I appreciate your words of encouragement so so much.

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@lhatfield96 , My second surgery was also a wedge section, I wanted another lobectomy but I was told that my lungs were not functioning well enough due to COPD, this was done in 2022. I had a lobectomy in 2020 and needed another surgery just under two years later, after the wedge section was done in 2022 I went into remission for four years, my point is that I had a longer run after the wedge section than after the lobectomy. I understand your concern but it really doesn’t seem to make any difference so don’t worry about whether they removed enough, no one ever gets used to ct scans but you will get stronger over time because your fighting spirit will get better, you are a warrior.

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Good Morning! I can, so, relate to you! I had my VATS segmentectomy in March of 2023. Then the scan every 6 months for 2 years. Then they said I would go to once a year because they had stayed clear. That one was kind of scary because I didn’t know if I wanted to wait a whole year. Yesterday I had that scan and I was so anxious! “What if something came back? What if a new one grew in the other lung?” Those are exactly what I thought. I kept it mostly to myself because I don’t like to get my husband’s anxiety going, or my children. I said my usual nightly prayers but didn’t think it was right to ask for a clear scan. (Maybe weird to some), so I just prayed that God’s Will would be done. Then I just started to plan if something was there. What I would do from there. That eased some of my anxiety. I have read on here from so many, that most of us get that anxiety right before our scans. I think it’s normal. No one wants to hear that it’s back. I am happy to say mine was still clear. Now I don’t have another one until next year. I’m sure the anxiety will come back right before that one too. I think planning what your next steps will be if it does come back will help as you will feel a little prepared and not just concentrating on being scared that it may come back. I hope this helps at least a little and I will pray for you!🙏❤️ Cindy

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Yes, scanxiety is unfortunately common for a lot of cancer patients. I've had it for five years--the length of time since my cancer diagnosis. Until this spring, I've had a CT every four months and have stressed out every single time. I 'm sure others have found ways of dealing with it. I have a counselor who listens to me and a sympathetic husband, but the anxiety is about me, not them, and about the time when I learned about the initial diagnosis and, of course, the cancer returning. My support dog helps me some. I encourage you to get a counselor and to try to use whatever works for you to get through the scan times. You'll be in my thoughts.

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