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Anyone have chronic lymphocytic leukemia (CLL)?
Blood Cancers & Disorders | Last Active: 14 hours ago | Replies (196)Comment receiving replies
@ppolockaz
I totally agree with you.
I am a retired RN and when I looked at my husband’s lab work through his portal, I was shocked.
It’s very concerning that this was overlooked for so many years. First elevation was in April of 2020.
I’m trying not to worry and to not worry my husband.
Do you know- do they usually wait until the overall wbc count is elevated to refer to hematology? Or, in your experience, do they wait until the ALs have reached a certain level?
Last year at AL of 5.772, my husband said, the NP said, an infection was probably the cause. However, the year before it was 5.7.
It makes no sense and to me, it borders malpractice.
Thanks in advance for your thoughts.
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@rimmy2 The next thing to do is get a peripheral blood smear, that will look at the cells, then possibly a flow cytometry, after that I got a CT scan then a PET CT (which they could have done first but that's the sequence. I was gonna be a bit freaked out because I'm "coffin claustrophobic" but on both the CT (5 min) and PET (30 min) your head is pretty much out of the donut and a worst take a valium or 2 before - i listened to my music on my phone. Havent done an MRI which not sure about that - being in a tube might not work for me unless they knock me out (??). but the PET shows alot. AL of 5.7 is still low, hell mine was a 9 then 12 now waiting for today's test. WBC was 10-13 to 18, so going in the wrong direction. Plus they smears will tell if you have muted or unmuted (mine, unfortunately) cells, which if you have the muted its not as bad, so to speak. I've only been diagnosed 3 months so it's all new to me....