I am sorry to hear about the challenges to finding treatment. It should be much easier. Do you have the option to see a MPN specialist by telehealth visit? They might be better at helping you find the other specialists you need. I have had a lot of issues with my teeth, I started to see a rheumatologist and found out I have Sjogrens disease (or something that looks like it because I do not have the biomarkers) and have a treatment that is helping. I also see a periodontist now on regular schedule. I have lined up a cardiologist and I am looking for a gastroenterologist. You need a team of specialists to cover all the symptoms. That might be challenging if you live far from healthcare specialists. Moving might make sense or building relationships through telehealth. I hope you find good solutions.