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As a caregiver, what helps you the most?

Caregivers | Last Active: 16 hours ago | Replies (40)

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@jett56
I went through 6 months, and 3 hospitalizations, of this type of thing with my wife - and much more: accusations of cheating, not caring, anger on anger, trying to control and trap her, etc. The last hospitalization, in February, finally seemed to get the medication mix correct. We have had a month and a half of stable life. She's calmer, at peace, compliant with medications, but can still enjoy things. We just got back from several days in Yosemite. Her dementia is progressing, which we can tell for sure, and will need to adjust things again, but have a better idea of trying to stay ahead of it. Dealing with medications is hard - many people struggle to have someone on quite powerful drugs, some with potentially serious side effects. However, having someone live in fear, paranoia, anger, etc., etc., is also not "right" - I would argue. The person with dementia is suffering, as is the caregiver. This is not easy, but it is a reality. I would suggest talking with the psychiatrist and neurologist about a plan.

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Replies to "@jett56 I went through 6 months, and 3 hospitalizations, of this type of thing with my..."

@theorydude I agree. My husband became verbally abusive, accusing and argumentative before he was diagnosed. I was so relieved to know why he did this and focused on relief his physical symptoms that I accepted this and didn't report it at appointments. A family member brought it up and his doctor brought in a neuropsychiatrist and after starting and adjusting his meds he is pleasant and thanks me for caring for him! I was told not to accept anything before reporting it and seeing if we could resolve it, both for him and to ease my caregiving. Good advice received.