Does the anxiety or fear of this prognosis ever get better?

Posted by rudysmom @rudysmom, Apr 6 10:44am

Maybe it’s just me, but since my diagnosis a few weeks ago my anxiety is through the roof. I made appointments with 2 different Endocrinologist and I have my first appointment tomorrow, hoping it will help put me at ease. As soon as I wake up in the morning it’s the first thing I think of or even in the night if I wake up to roll over. The information is so overwhelming do this not that, then you’ll read something saying the total opposite. The statistic of 1 out of 2 women will get a fracture is mind numbing. I feel like I’m doomed no matter what I do. Every time I get a twinge in my back I now think, here we go. I’m 60 and have no other health problems and take no medications, yet. I exercise every day now and listen to books on tape to get mind focused on something else. I’m not afraid to do the work, just afraid of the future outcomes, which I know I can’t control, but anxiety and fear have their own ideas.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

jk60 | @jk60 | 6 days ago

In reply to @maryandnans "I felt the same way I found BRICK HOUSE BONES on Facebook. Dr. Lisa Moore is..." + (show)

@maryandnans I came here to say the same thing. Brick house bones is great: nutrition, balance, and strength training for all around support.

boneappetite | @boneappetite | 6 days ago

It has curated anxiety for me as well. You can start to become afraid to do things. I am almost 63 and have had compression fractures but I got past them and am very active. I find that my anxiety is reduced by doing something about it.. You are not afraid to do the work, and so you will strengthen your bones through all available means and live your best life once you have a plan you sign on to.

daisy17 | @daisy17 | 6 days ago

In reply to @beachesanddreams "@daisy17 I’ve made a copy, thank you. If you don’t mind my asking, how is your..." + (show)

@beachesanddreams I haven't had my blood tested recently, but a few months ago it was fine. Can you be more specific what you are asking about?

beachesanddreams | @beachesanddreams | 5 days ago

In reply to @daisy17 "@beachesanddreams I haven't had my blood tested recently, but a few months ago it was fine...." + (show)

@daisy17 I’m asking primarily about Vitamin D levels, if yours are in a safe range with what you’re currently taking.

nycmusic | @nycmusic | 5 days ago

In reply to @boneappetite "It has curated anxiety for me as well. You can start to become afraid to do..." + (show)

@boneappetite fear of doing things is no way to live…we can chose to be more aware, what to be more careful about, and any way that we can be proactive to make the best of where we find ourselves..

lylii | @lylii | 5 days ago

I'm odd, I guess, but my anxiety is more over the medications used to treat the condition than over the actual condition! That's just me though.

gravity3 | @gravity3 | 5 days ago

In reply to @lylii "I'm odd, I guess, but my anxiety is more over the medications used to treat the..." + (show)

@lylii

You don't sound odd at all. There are lots of people on this forum who have expressed anxiety about introducing a new medication into their bodies. Just don't let the anxiety get the best of you. Doing lots of research and hearing other people's experiences has helped me a lot.

lylii | @lylii | 5 days ago

In reply to @gravity3 "@lylii You don't sound odd at all. There are lots of people on this forum who..." + (show)

@gravity3
Thank you!

daisy17 | @daisy17 | 4 days ago

In reply to @beachesanddreams "@daisy17 I’m asking primarily about Vitamin D levels, if yours are in a safe range with..." + (show)

@beachesanddreams The last time I had my vitamin D levels checked through bloodwork, it was on the low end of normal. My Dr agreed I could increase my daily supplements of Vit D a little bit to try and raise it some.

lynn59 | @lynn59 | 4 days ago

I can totally relate. When my borderline osteoporosis turned more severe, I knew I had to take action. After eight months of agonizing research and worry about the options, I settled on teriparatide (Forteo, Osnuvo, etc). I just finished my two years of daily injections and I’m super happy with the results, which I also partially attribute to gradually progressing to heavy weightlifting 2-4 times per week.

As expected with teriparatide, my spine (trabecular bone) gained the most, with the hip (cortical bone) gaining slightly. All my bones are of better quality (improved architecture), even my wrists … which declined slightly but apparently not significantly.

I’m 67 years old, active and fit, 20 years post menopausal. Here are my scores pre teriparatide and a couple days before finishing two years later. Yesterday was my last dose. This Tuesday I’m getting a “Reclast” infusion to lock-in my gains. I’m not thrilled to be doing this drug, but in my mind I have no choice. I’m not prepared to try BHRT yet. Maybe after this drug sequence I’ll feel better about being able to maintain with heavy weightlifting and nutrition/supplementation, perhaps with an added boost of BHRT? I’m hoping no more drugs are in my future, but I accept I may need to …. so I can stay active and fit;)

L1-4 +22% -3.3 to -2.0
Femoral neck +8% -2.7 to -2.4
Total hip +2% -2.2 to -2.1

I’ll let you know how my body handles the infusion next week.