Pluvicto Prognosis

@lag
Dr. Kwon is a urologist. Get an appointment with Dr. Heath. She is a GU oncologist and is really great to work with. She is the head of the department. You should look for a doctor that matches what you need, that’s not a urologist.

Thanks, and "Nahhh"...I take everything in stride...No need for excessive concerns (NOT worries) except those first 3-5 days. My legitimate concern is for those around me. I am single and have gone through these entire procedures by myself...No biggie, I'm used to it...But I speak out of respect for those that HAVE to be around me...Drivers, store attendants, should I have chosen to shop,...neighbors, my teenage daughter, etc...I mean, why take any chances??
I read everything with a grain of salt and a humorous (yes, I know this is serious stuff, but that's how I keep my sanity!!) outlook...And, since this is my first rodeo with Pluvicto, I'm ever more watchful...
I thank you for your input...how is your husband now, 2 years after?

Blessings

@deccakid , you do need humor. I dressed for Halloween as a Pluvicto glow worm.

@northoftheborder

Saw the radiation safety officer yesterday, along with Radiation Dr. and nurses...When I asked how long pluvicto would extend life vs. chemo, he said 4 months! Really?? I don't get it and I don't understand where they get this info from.

Also, regarding safety of Pluvicto. As the spouse, they said my husband could sit in the back seat and we could drive the 20 min. home and that would be find. But, we're not 6 feet apart. I asked if he could take a Taxi Van so he is further away in the back seat, and they said that wasn't allowed because he's not allowed to be in the public where they don't have consent. Also, someone has to wheelchair my husband out to the main door of the hospital and that's another 10 minutes at least. Then we have to go back the next day for another trip to the hospital for a scan, so another 20 minutes back and forth and also close contact with the wheeling of the wheelchair. This all makes me very worried.
Then, we sleep in separate rooms with a wall between us, but only one foot between the end of this feet to the bedroom wall, and then my head is right there on the other side of the wall.
I think I should just stay in a hotel for 2 nights as we don't have a separate bathrooms and my husband has to pee in urinals...so lots of potential for splashing and spilling...OMG ...this all sounds so horrible...
What do other people do? Do they stay in hotels...? or maybe they have larger houses and separate bathrooms and maybe their husbands drive?

Thank you all for your input. I read and digest everything, but go by my own research and my oncologist. Sure, probably not a problem if careful, but I take no chances. I've always acted on the side of caution without being "worried" about it...ultimately, it's common sense...

And yes, I think I previously posted a quote from a prominent Oncologist...(to paraphrase)...'we do what works until it stops working, then we move on to something until it stops working'...ad nauseam (excuse the expression). "One man's meat is another man's poison..."
I'll check back in 3 months after a scan and let y'all know if I'm one of the lucky ones..........
Blessings to all.

@deccakid wrote ❝I previously posted a quote from a prominent Oncologist...(to paraphrase)...'we do what works until it stops working, then we move on to something until it stops working'.❞

Interestingly, that strategy is in flux these days, at least for metastatic prostate cancer.

Instead of the traditional sequential treatment escalation (one treatment until it stops working, then the next, and so on…) a growing number of major trials are suggesting that you're better hitting metastatic prostate cancer with everything you've got up front. That's the basic philosophy behind doublet and triplet therapy for example.

Obviously, that doesn't apply to all types of treatment, and not all oncologists have bought into such a drastic shift, but it's moved from bleeding-edge when my treatment started in 2021 to borderline mainstream now, which is an extraordinarily fast change (and why the SEER data about our survival prospects is suddenly badly out of date).

@cal77
I'll chime in again, although I think I did re: a similar post.
It's not so much the physical proximity, it's the bodily fluids. I don't see how sleeping in 2 beds, no matter how close they are together...it's most likely the possibility of overnight sweating. The same for any of the bodily fluids...Sure, I am concerned about anyone around me and chose to hibernate for 3-5 days...One could say that's too much, but I think about...shopping?...sure, I can be 6 feet away, but what I touch the cashier touches, monies exchanged, handling food you may put back on the shelf, a cough in the wrong direction, etc.
Use common sense, but I think you might be too fearful of it...in the car, just have your husband wear a mask, be fully clothed and wear nitrile gloves...When he pees, just don't miss...and flush twice. Hospitals know the parameters, they'll deal with the ancillary equipment.
You'll be fine!! Keep us informed!
Blessings

@deccakid

Thanks...They told us we should have separate dishes, or rather paper plates and separate utensils. My husband can't urinate sitting or standing and so he lies down and it goes into urinals. These have to be washed out and dumped into the toilet. Lots of potential for drops and spills. Then he wears Depends which he changed at least twice a day and these , I was told should be placed into double garbage bags, and then his clothes if they get spilled on by urine or he sweats, then put them in a bag for 7 days, and then wash in the washing machine separately and wash twice... OMG is all l can say. This is unreal.

@deccakid

Thanks...They told us we should have separate dishes, or rather paper plates and separate utensils. My husband can't urinate sitting or standing and so he lies down and it goes into urinals. These have to be washed out and dumped into the toilet. Lots of potential for drops and spills. Then he wears Depends which he changed at least twice a day and these , I was told should be placed into double garbage bags, and then his clothes if they get spilled on by urine or he sweats, then put them in a bag for 7 days, and then wash in the washing machine separately and wash twice... OMG is all l can say. This is unreal.

@cal77
There is no standard amount of time. Pluvicto works. Four months would be on the Short side.

The guy that runs the Advance prostate cancer online forum for the reluctant brotherhood had his Pluvicto treatment about four months ago. His treatment was so successful that after three treatments, his PSA dropped a .05 and he did not take any more treatments, holding them off till later. His PSA has stayed close to that since the Treatments. He’s had prostate cancer for 12 years and has had almost every treatment you’ve ever heard of.

The biggest problem is that it is not successful for everybody, about 40% of people don’t get good results. The other 60% vary from 50% reduction in PSA to a major reduction in PSA. You need to see what happens to figure out how well it’s going to work for him. Some people get 18 months out of it.

You’re getting a little overworked about the radiation. I know some people that have been told many fewer requirements for keeping apart. You don’t have to worry about it going through a wall.

A 20 minute ride is not enough time for a significant radiation transfer. You could always rent a bigger car for two days, But I bet the doctors will tell you that’s not a problem.