Sudden permanent incremental reductions in brightness levels

Posted by yorkshireman @yorkshireman, Mar 12, 2024

Hello,

For many years now, I have sudden events every few months to every few years that suddenly reduce my brightness levels in both eyes at the same time by a small amount, while leaving everything else (visual acuity, colour perception, etc) working normally without any change. The pattern is that there is one distinct event every few years, followed by a series of smaller events in the following months before it stabilises again.

This new brightness level becomes the new permanent brightness level. There is also strong tiredness for a few days after an event. There is no change in my behaviour or activity/eating patterns before one of these event sequences start.

Hospital eye clinics and neurology doctors cannot find a reason. There is nothing obvious in the eyes themselves. VEP tests have not revealed anything. I am due for another MRI but previous MRIs have not found anything.

This is also noticable in various other ways, such as going outside while pupils are dilated, which used to be painful. However, due to the reduction in brightness levels, that has not been true for years.

Has anyone ever seen anything like this before, with just a sudden change in brightness levels in both eyes at the same time (usually overnight while sleeping) without any other detectable changes ? If so, was there a confirmed diagnosis made ?

I am looking for viable suggestions I can run past the doctors in case there is something rare they have not considered, so thanks for any hints or suggestions.

Given the lack of noticable structural changes, I am now wondering if this might be some brain processing or neurotransmitter problem, but I am mostly healthy in other respects, and do things like long day walks (10-15 miles) several times a month without any problems.

Thank you for any ideas you may have. There is clearly something very unusual going on and my own research has not turned up anything so far.

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Profile picture for riy @riy

@yorkshireman I have a question, Whenever doctor puts dilating drops in your eyes to check the retina, do you feel a sense of relief, as if the world has become brighter?

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@riy Brightness increases somewhat in indoor and computer monitor environments as expected due to the dilation, but even then it doesn't do anything to restore loss of fine detail in situations such as those same pictures mentioned above on computer monitors.

BTW, following on from my comments above, regardless of whether I am dilated or not, it's also interesting that higher contrast pictures on computer monitors appear to be more normal than lower contrast pictures, even if duller than previously.

Whatever is causing this damage, it's clearly something that, among other things, is attacking my contrast sensitivity ability and is much more pronounced in lower resolution environments. On a personal note, I really hate not knowing what this damn thing even is... 🙁 At this point, it's clearly something really rare.

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Profile picture for jeanrod825 @jeanrod825

This also happens to me overnight and I lose vision. This happened in right eye and now in left eye. I can only see part of a sentence and things are not bright . Glare is bad also. Any sun glasses anyone had found to make things brighter and what color lens? I find blue light glasses help me to read a little better . I am showing optic nerve damage and being treated again for GCA. Prayers for healing and comfort for all.

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@jeanrod825 I am new to this group and finding there is a lot of good and useful information here that can help me deal with what I am dealing with. I have a diagnosis of GCS with Temporal Arteritis.

As far as sunglasses get good ones. Cheap sunglasses will only increase your problems. I spent the money for Oakleys. I got the Grey 3 lenses for the best color rendition and I also got the Polarized lenses to reduce glare. It has made a huge difference for me. Good luck.

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