Are there are any young onset Parkinson's patients in our group?

@hopeful33250 well I don't have much news yet about the biopsy. Possible Ca but further evaluation with a genetic test. I have to wait another week. I asked about the goiter and the young doctor looked confused. I told him my symptoms and he then took a look at the records I had brought from my prior Doctor. He went and discussed it with the head doctor and came back and said well we can refer you to a surgeon and I told him my view point on that. I don't want unnecessary surgery that I would wait until the test results were final and then make my decision. I don't think he was really prepared and I want surgery only if I need it. My blood pressure drops so low during any surgery I feel unnecessary surgery is too much of a risk to take. Does anyone else have an opinion on this matter. I believe I found the doctor at a loss of words but I have so many things going on I need concrete reasons to remove anything from my body now.

@wkrebs59 It sounds as if you are doing a great job advocating for yourself! I hope that you continue to learn as much as you can and encourage your medical team to think with you on future treatments.

@wkrebs59 I to have early onset but it was 52 before I was diagnosed. they thought I had stokes. I was on propanol to which stopped me from hiking and other things I loved. I find it difficult to find others in my age range. And l too lost a carrier I loved. I was a self taught web developer and a good one .I built my own business from scratch until I was let go form a project that I managed. because of many issues. My partner at the time even left me because my business failed. it was my dream and I was doing well and getting well known.
But I have learned a lot about life. life is beautiful and have learned to survive. I still want to travel and have ideas. but it hard to complete things .
I am having trouble finding IN person support groups for people like us.
it's difficult. but one day at a time.

Thank you for your response and I totally agree with everything you shared! I have only know about my tremors being Parkinson’s for a little over a year and through many caring and understanding people who have our condition have been helping me focus on what really matters ❤️❤️ try to focus on you for a while I have been busy exercising so I can continue to move around freely. Lately, I have been slowing down, but I’m not slowing down on the exercise. I’m fighting with what I’ve got. I’ve now been diagnosed with a heart condition and I’m getting a full work up to make sure I don’t have a valve weekend or my coronary arteries blocked with all that we go through. It’s just one more thing that I have to try to stay strong and I’m not quite certain why other people don’t understand really what we’re going through they only see one or two things going on with our body and if we don’t tell them how much we’re suffering they just don’t get it and I don’t have time to try to get them to understand you’re more important so work on you and if they’re important it’ll eventually show. Thank you again for commenting and reach out anytime.

@wkrebs59
Thank you again for your reaction!! I wanted to give you an update on my testing. First the endocrinologist had done a biopsy of my thyroid to rule out cancer. I also had two large goiters. the percent of ca was only 5% at this time but the goiters size is 7cms on the left and 6.5 cm on the right. The doctor wanted to send me to a surgeon but I told them because of my Parkinson's my heart has been giving my problems with high heart rates and low blood pressure . So we will follow up in 6 months with an Ultrasound of the thyroid. The follow up of passing out a few weeks age my Primary and Cardiologists were wanting a series of tests. My primary ran a physical which was already scheduled and included a Lipoprotein a blood test. My parents both had high cholesterol so about 2 years ago even though I lost 50 lbs. with the help of a trainer and nutritionist my cholesterol began to continued to elevate I was put on Rosuvastatin 40 mg. and Ezetimibe 10 mg. I have been faithfully continued on a Mediterranean Diet and have been very active with Boxing, Tai Chi and walking due to my muscles with my Early onset Parkinson's. Well the bloodwork which my primary ordered show an extremely elevated cholesterol count. So a Lipo protein a blood test was given. The average count a patient should have is less than 70. Mine came back 395. The next test she ordered was a CT cardiac Calcium Score Before I give you the results I must inform all that will listen there are so many athletes who take very go care of their health but for a unknown reason they have a heart attack and die. They are now researching why and have found that genetics has a extremely high reason for their sudden heart attacks and dying. When I found this out I went to all my family: two son's and brother and sister also my cousins. I begged them to it checked. For about 2 years I have been taking the same medication. Well, the results of the Cardiac Score CT shows I now have Atherosclerotic Cardiovascular disease (ASCVD) risk stratification. What that means is I have Severe burden of calcified coronary plaque in my Coronary arteries. if left untreated I could have a heart attack or stroke. I now am going through a complete workup to determine the damage this has caused. I look at my passing out as a blessing so my heart has the chance to be possibly healed. So far I have had an echo cardiogram and 11 days with a holter monitor and a nuclear stress test will be done in a week. I wanted to share this with all of you so if there is any chance that you have hereditary high cholesterol please don't wait ask your doctor to run the blood test they will not run one unless there is a known family history of high cholesterol. I have once again asked my family members to please go get it now!!!! The scoring numbers for the CT Calcium Score are considered high at the range of 100-200 and my reading is 440. The work up my cardiologist is doing is to determine if my coronary arteries are blocked or my valves have been damaged. I am learning that we can never give up our fight and we have to fight even harder to show life is worth every extra day we are given. Thank you for letting me share this if it only helps one I will be happy.