National Jewish Health Appt

Posted by mtinderscott2626 @mtinderscott2626, Apr 2 8:55am

BE since 2012. Positive for MAC December 2025 from sputum culture. Referred to NJH, and appointments are currently scheduled for May 2026. A local pulmonary specialist performed a bronchoscopy in January 2026. The bronchoscopy culture was NEG for MAC, but I was positive for Pseudomonas.

NJH said that I can continue with my appointment if I want to. My local doctor said they felt confident to manage the BE.

I am a thin, 59-year-old female (more susceptible to MAC) and run a horse farm, where I cut 14 acres of grass, clean horse stalls, etc.

I can't decide whether to keep my appointment at NJH. I would really like to educate myself on how to keep myself healthy, etc.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Thanks. No I have not researched more about the pseudo. All the concern was over MAC and I unfortunately assumed that the antibiotic the doctor gave me would take care of it. My local doctor did not indicate that pseudo was a difficult issue to combat like MAC. I am not learning through this portal that this is also very serious. I appreciate your time.

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Profile picture for mtinderscott2626 @mtinderscott2626

Thanks. No I have not researched more about the pseudo. All the concern was over MAC and I unfortunately assumed that the antibiotic the doctor gave me would take care of it. My local doctor did not indicate that pseudo was a difficult issue to combat like MAC. I am not learning through this portal that this is also very serious. I appreciate your time.

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@mtinderscott2626
A couple of things that might help with being new to this Mayo Connect.

When answering a particular persons post, if you want to respond to them in particular, first click on the blue oval with the words reply.
Write your response and then when finished typing hit the oval in black under the box that says reply.

Also to research a particular topic(s) go back to the top of this page and click on the blue letters on the left indicating MAC and Bronchiectasis. You will come to the page where you write in what you want to find subject wise. Where it indicates Search discussions.
Hope all this helps.
Barbara

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Profile picture for mtinderscott2626 @mtinderscott2626

Thank you for taking the time to reply. I don’t have any symptoms out of my norm….. coughing up minimal sputum daily but sometimes not enough for a decent sputum specimen. I constantly clear my thought which did get better after my antibiotics for the pseudo. However, I am not starting to clear my through more frequently.

Jan 2026 CT: bronchiectasis and bronchiolectasis in the lingula, right middle lobe and right upper lobes. Similar tree-in-bud opacities in the inferior right upper lobe with decreased right middle lobe tree-in-bud opacities. Subsegmental atelectasis within the lingula. Similar patchy mixed solid and groundglass opacities in the right lower and right upper lobes with minimal new ground glass opacity in the anterior left lower lobe. IMPRESSION: Similar bronchiectasis and bronchiolectasis with similar distribution of the tree-in-bud opacities which may represent mycobacterial infection.

I only had one sputum test come back positive and then a scope was done and it came back negative. I got an appointment with NJH before the negative result from the bronchioscope procedure.

Jan 14, 2026 culture: Colony forming units per mL - 75,000 Pseudomonas species, NOT aeruginosa

I was put on antibiotics for the pseudomonas. But I am clueless if the antibiotic worked. Is pseudo as difficult to treat as MAC? I haven’t heard anything else about it. Is the pseudomonas as bad as MAC? Is this worth the trip to NJH?

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@mtinderscott2626 with only one sputum, you cannot be “officially” diagnosed with MAC - you need three. I am surprised you were referred to NJH with only one positive sputum sample. I am assuming your local doctor was assuming that the bronchoscopy was going to be positive (again need only one positive on bronchoscopy) and then when it wasn’t, that threw a wrench in things as you explain in your original post. Yes, Pseudomonas aeruginosa is considered one of the nastier bugs for bronchiectasis (“BE”) patients and I would definitely want multiple opinions on treatment for pseudomonas aeruginosa as even the best minds in this area disagree on approach. BUT your lab report specifically states “Pseudomonas species, NOT aeruginosa”. It doesn’t say what strain of pseudomonas it IS but not all pseudomonas is created equal, and pseudomonas that is NOT aeruginosa may not always be treated. So, back to your original question, should you keep your appointment with NJH, it seems to me you don’t have a good understanding of your circumstances, and for that reason alone I think the trip may be worth it to you. In the meantime, if I were you I would ask your doctor to order a repeat respiratory sputum test to see if the pseudomonas cleared. If you have 6 weeks, and it sounds like you may not, I would also do AFB sputum tests, on three separate days, to check in on MAC. Don’t worry if you don’t have time, NJH will do the sputum testing, but for me, I would want that info going into the NJH appointment if I could get it.

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