I have had peripheral neuropathy for several years. Recently, the pain has increased. I am currently taking gabapentin 600 mg. Would like to discontinue as I don’t think it is effective.
Welcome @faithmulqueen, Sorry to hear that your gabapentin treatment is not controlling the neuropathy pain. I only have numbness and some tingling with my neuropathy so gabapentin doesn't help me as it's only for pain relief. Have you talked with your doctor to see if there may be other medications that would work better?
I have had peripheral neuropathy for several years. Recently, the pain has increased. I am currently taking gabapentin 600 mg. Would like to discontinue as I don’t think it is effective.
I've been on gabapentin for years (900mg/day) for bipolar but it has not had any apparent effect on the neuropathy in my ankles & feet. I've now gone to wearing women's nylon thigh-high stockings + garter belts for relief of the symptons. Size Large act by compressing.
Six months after having an Abbott ProclaimPlus FlexBurst360 SCS implanted, living with less foot neuropathy pain but still enough to deprive me of sleep six or seven nights out of 10, I've learned by experiment to just shut the dadgum thing off. I've lately enjoyed four or five stretches of up to 20 hours of little or no pain with it off. It works sometimes, backfires other times. Abbott doesn't do much if anything to educate its customers. I've learn more from experimenting--or from Mr. Artificial Intelligence. Anyone else?
Six months after having an Abbott ProclaimPlus FlexBurst360 SCS implanted, living with less foot neuropathy pain but still enough to deprive me of sleep six or seven nights out of 10, I've learned by experiment to just shut the dadgum thing off. I've lately enjoyed four or five stretches of up to 20 hours of little or no pain with it off. It works sometimes, backfires other times. Abbott doesn't do much if anything to educate its customers. I've learn more from experimenting--or from Mr. Artificial Intelligence. Anyone else?
I’m the lucky one. I’ve had PN for years and I’m pain free, just weakness and numbness in my feet. I have walking and balance issues but I deal with it. PN is a struggle for us and no doctor can explain why I have no pain.
@cit10jetjockey I have the same symptoms however, I also have drop foot and wear AFO's. But no pain and you're right, we are some of those fortunate not to have pain. Big problem for me is balance. I went to Mayo in MN Feb 2020, no answers on why I have PN. My guess is genetics or possibly antibiotics.
@cit10jetjockey I have the same symptoms however, I also have drop foot and wear AFO's. But no pain and you're right, we are some of those fortunate not to have pain. Big problem for me is balance. I went to Mayo in MN Feb 2020, no answers on why I have PN. My guess is genetics or possibly antibiotics.
@njed when you say no pain do you mean numbness? I find the numbness to be as terrible as pain. Foot feels dead, cold and due to not feeling I cant tell if something is broken. Due to it being sensory and motor I have hammertoes, my arches are super high and dont touch the ground causing ankle problems so I too have an AFO. No doctor told me these deformities could happen which I googled once I noticed them. I hate this disease and how the neurologist I see downplays and makes it seem like its not serious. Id trade the deformities for pain as at least there is possible treatments for it. From what I have read no pain is either a further progressiom or long fibre (I have that) which results in the mobility issues. I think no pain is actually the devil in disguise, nay not a blessing
I’m the lucky one. I’ve had PN for years and I’m pain free, just weakness and numbness in my feet. I have walking and balance issues but I deal with it. PN is a struggle for us and no doctor can explain why I have no pain.
@cit10jetjockey
Hi I’ve been dealing with Peripheral Neuropathy for years. Glad to hear you’re pain free! I have numbness and tingling all over and weakness also. I can’t take Lyrica or Gabapentin. I get bad reactions. I eat well and try to keep moving but it’s hard sometimes. What’s your secret for being pain free?
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Welcome @faithmulqueen, Sorry to hear that your gabapentin treatment is not controlling the neuropathy pain. I only have numbness and some tingling with my neuropathy so gabapentin doesn't help me as it's only for pain relief. Have you talked with your doctor to see if there may be other medications that would work better?
@faithmulqueen .
I've been on gabapentin for years (900mg/day) for bipolar but it has not had any apparent effect on the neuropathy in my ankles & feet. I've now gone to wearing women's nylon thigh-high stockings + garter belts for relief of the symptons. Size Large act by compressing.
Jack
Six months after having an Abbott ProclaimPlus FlexBurst360 SCS implanted, living with less foot neuropathy pain but still enough to deprive me of sleep six or seven nights out of 10, I've learned by experiment to just shut the dadgum thing off. I've lately enjoyed four or five stretches of up to 20 hours of little or no pain with it off. It works sometimes, backfires other times. Abbott doesn't do much if anything to educate its customers. I've learn more from experimenting--or from Mr. Artificial Intelligence. Anyone else?
@neurobob - There are a few discussions in other support groups on the Abbott SCS that might be helpful to scan through:
-- Proclaim Plus SCS: https://connect.mayoclinic.org/discussion/proclaim-plus-scs/
-- Anyone had an Abbott SCS put in? BurstDR strength setting?
https://connect.mayoclinic.org/discussion/abbott-burstdr-strength-setting/
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1 Reactionyes I am I have gone to Grand Strand Health and Wellness the treatment didn't work
Has anyone had the Qutenza
(capsaicin) 8% topical system)?
@cit10jetjockey I have the same symptoms however, I also have drop foot and wear AFO's. But no pain and you're right, we are some of those fortunate not to have pain. Big problem for me is balance. I went to Mayo in MN Feb 2020, no answers on why I have PN. My guess is genetics or possibly antibiotics.
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Helpful -
Hug
1 Reaction@njed when you say no pain do you mean numbness? I find the numbness to be as terrible as pain. Foot feels dead, cold and due to not feeling I cant tell if something is broken. Due to it being sensory and motor I have hammertoes, my arches are super high and dont touch the ground causing ankle problems so I too have an AFO. No doctor told me these deformities could happen which I googled once I noticed them. I hate this disease and how the neurologist I see downplays and makes it seem like its not serious. Id trade the deformities for pain as at least there is possible treatments for it. From what I have read no pain is either a further progressiom or long fibre (I have that) which results in the mobility issues. I think no pain is actually the devil in disguise, nay not a blessing
@cit10jetjockey
Hi I’ve been dealing with Peripheral Neuropathy for years. Glad to hear you’re pain free! I have numbness and tingling all over and weakness also. I can’t take Lyrica or Gabapentin. I get bad reactions. I eat well and try to keep moving but it’s hard sometimes. What’s your secret for being pain free?
@thomasmichael
Thank you!💪