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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: May 1 5:43am | Replies (3276)Comment receiving replies
@cit10jetjockey I have the same symptoms however, I also have drop foot and wear AFO's. But no pain and you're right, we are some of those fortunate not to have pain. Big problem for me is balance. I went to Mayo in MN Feb 2020, no answers on why I have PN. My guess is genetics or possibly antibiotics.
Replies to "@cit10jetjockey I have the same symptoms however, I also have drop foot and wear AFO's. But..."
@njed
I don't consider myself lucky that my pain is gone. I have other neuropathy complications that for me are worse than the pain, weakness, balance, ED, bladder and bowel issues.
Jake
@njed what’s an AFO?
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@njed when you say no pain do you mean numbness? I find the numbness to be as terrible as pain. Foot feels dead, cold and due to not feeling I cant tell if something is broken. Due to it being sensory and motor I have hammertoes, my arches are super high and dont touch the ground causing ankle problems so I too have an AFO. No doctor told me these deformities could happen which I googled once I noticed them. I hate this disease and how the neurologist I see downplays and makes it seem like its not serious. Id trade the deformities for pain as at least there is possible treatments for it. From what I have read no pain is either a further progressiom or long fibre (I have that) which results in the mobility issues. I think no pain is actually the devil in disguise, nay not a blessing