Anyone else have non allergenic, chronic rhinitis?

Posted by gillytrue @gillytrue, Mar 11 2:29pm

I am interested in non- allergenic chronic rhinitis.

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Hi!
After one year of seeing multiple ENTs having ballon sinusplasty and eustacian tube dialiation, seeing 2 different asthma doctors a variety of test and a trip to the ER for chest tightness I have been diagnosed with non allergic rhinitis as well as some asthma and blood test also reveal a weak immune system.
My current doctor who specializes in sinuses and allergies started with zytec and Mucinex and a steroid nasal rinse (pulmicort with saline) which helps a bit. I was also prescribed Ipraptropium in the saline rinse which I only use occasionally when I feel like I can’t breathe but it is so drying and isn’t a 100% fix and gives me a headache if Inuse to often. I was also prescribed a compound chlorpheniramine malaete which helps a bit but makes me sick. My quality of life is significantly impacted depending on whether it is cold or humid and I used to garden and walk but now I am pretty much forced inside due to this diagnosis. My current doctor suggested cryotherapy shock freezing the posterior nasal nerve and another doctor suggested Rhineaer. Has anyone had any success with these. I used to be fairly active but now I can’t be because of this illness. The only symptom I had of this illness prior to this year was a runny nose every morning for 15 minutes and runny nose when walking in the cold air. My Mom had this as well but never progressed to the symptoms I am
now experiencing. Anyone living with the same sort of thing and consider these surgical
Procedures with any luck. Has anyone had any success with any other treatments.
Thanks!

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Profile picture for gillytrue @gillytrue

First time I went to the allergy doctor: skin tests were all negative; non- allergenic rhinitis and asthma diagnosed immediately.

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@gillytrue
Hi!
I have this too and I am
sorry to hear of your diagnosis. Mine is pretty severe with it really limiting what I can do. What treatments have you had and were any successful?
Thanks

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Profile picture for tulipstulips @tulipstulips

@gillytrue
Hi!
I have this too and I am
sorry to hear of your diagnosis. Mine is pretty severe with it really limiting what I can do. What treatments have you had and were any successful?
Thanks

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@tulipstulips
Hi!
Impraptropi bromide .02% as a nasal rinse with neli med sinus rinse 2 x’s a day. It is very drying so I only use it when it is really bad. I had balloon sinusplaaty which did not work. What has worked for you?

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Sorry to read about your difficulties. While you state you do not have allergies, have been tested, and seen numerous professionals, you do mention that you have asthma.
Asthma is the body's reaction to a sensitivity - typically an allergy. This is happening inside the lungs. The airways in the lungs cause the body to have increased air passage swelling (inclusive of nasal and throat), increase mucous production, and narrowing of airways (again nasal, throat, lung alveoli, etc.) This can cause air trapping in the lungs. Medication is usually needed to help decrease the swelling, open the passages of the lungs, and get rid of the mucous which is happening in the lungs and airways. There are many types of asthma - one which is considered Cough Variant asthma - which causes the coughing to clear the air passages - with or without wheezing - the sound which is heard when the airway passages have the above changes. Yes, runny nose causes the post-nasal drip, which goes down the throat, causing the asthma symptoms in the body. Asthma is considered an allergic reaction inside the body. Eczema is considered an allergic reaction outside the body - so eczema patients should always be on the look-out for asthma signs/symptoms.
It seems that you are on the right medications of steroid inhaler/nebulizer/spray. Antihistamines such as Zyrtec may be helpful as well. This decreases the histamine reaction which causes asthma as well. While not having "allergies" you are being treated for allergies for control of your asthma.
You can also look into Dextromethorphan (DXM). It is a common over-the-counter antitussive (cough suppressant) found in products like Robitussin and Delsym, used to temporarily treat coughs caused by colds or inhaled irritants. which is an active ingredient in cold/flu medication - but not without the go ahead from your provider. Sometimes Guaifenesin is a widely used over-the-counter expectorant (Mucinex, Robitussin) which can make the asthma worse. Any consideration of over the counter medication should be discussed with your provider.
A professional group which you may look into is called the Asthma Educators Association. They are a professional group consisting of Nurses, Respiratory Therapists, and Health care providers (NP, MD, etc.) who specialize in the treatments of asthma. They go through extensive training in the treatment of asthma - and take an exam called the the AE-C - to be Certified Asthma Educators. They may be able to shed some light in further information and treatment which could help you. Good luck and feel better.

REPLY
Profile picture for pht1123 @pht1123

Sorry to read about your difficulties. While you state you do not have allergies, have been tested, and seen numerous professionals, you do mention that you have asthma.
Asthma is the body's reaction to a sensitivity - typically an allergy. This is happening inside the lungs. The airways in the lungs cause the body to have increased air passage swelling (inclusive of nasal and throat), increase mucous production, and narrowing of airways (again nasal, throat, lung alveoli, etc.) This can cause air trapping in the lungs. Medication is usually needed to help decrease the swelling, open the passages of the lungs, and get rid of the mucous which is happening in the lungs and airways. There are many types of asthma - one which is considered Cough Variant asthma - which causes the coughing to clear the air passages - with or without wheezing - the sound which is heard when the airway passages have the above changes. Yes, runny nose causes the post-nasal drip, which goes down the throat, causing the asthma symptoms in the body. Asthma is considered an allergic reaction inside the body. Eczema is considered an allergic reaction outside the body - so eczema patients should always be on the look-out for asthma signs/symptoms.
It seems that you are on the right medications of steroid inhaler/nebulizer/spray. Antihistamines such as Zyrtec may be helpful as well. This decreases the histamine reaction which causes asthma as well. While not having "allergies" you are being treated for allergies for control of your asthma.
You can also look into Dextromethorphan (DXM). It is a common over-the-counter antitussive (cough suppressant) found in products like Robitussin and Delsym, used to temporarily treat coughs caused by colds or inhaled irritants. which is an active ingredient in cold/flu medication - but not without the go ahead from your provider. Sometimes Guaifenesin is a widely used over-the-counter expectorant (Mucinex, Robitussin) which can make the asthma worse. Any consideration of over the counter medication should be discussed with your provider.
A professional group which you may look into is called the Asthma Educators Association. They are a professional group consisting of Nurses, Respiratory Therapists, and Health care providers (NP, MD, etc.) who specialize in the treatments of asthma. They go through extensive training in the treatment of asthma - and take an exam called the the AE-C - to be Certified Asthma Educators. They may be able to shed some light in further information and treatment which could help you. Good luck and feel better.

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@pht1123
Hi!
Thank you for the response. I am currently being treated by an asthma specialist that also specializes in sinuses. The one airway concept. They did a methycholine challenge to determine I had some mild asthma but said I have non allergic rhinitis or vasomotor rhinitis. I tried the medications you suggested. I will mention what you indicated to the asthma doctor. This has become divination for me so I will look into the asthma specialist you mentioned.
Thanks,
Maria

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